2/26/10 Dear Parents: We are a group of researchers at Johns Hopkins who are interested in studying ways to improve treatment options for children with bladder exstrophy. For the current study, we are most interested in a special group of children who have both exstrophy and hip dysplasia. If you had a child who was born with exstrophy and developed hip dysplasia or other hip problems, and would like to share your experience, please contact us at the email: This is not a clinical trial. We are interested in hearing about how the various treatments affected your child's health status. Thank you for your time. Johns Hopkins |