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Please select from the following:
- Association of Birth Defect Children
- Augmentation Cycstoplasty (Bladder Augmentation)
- Bladder Augmentation and Incontinence (+ more)
- Bladder Stones
- Catheterization through abdominal stoma (Mitrofanoff) - Picture
- Clean Intermittent Catheterization (CIC)
- Cystoscopy
- Cystoscopy and Ureteroscopy
- Children and Youth Assisted by Medical Technology in Educational Settings. Guidelines for Care, 2nd Edition.
A book containing detailed daily care guidelines and emergency-response techniques, includes information on working with a range of students, including those who have HIV infection, rely on ventilators, utilize tube feeding, or require catheterization.
- Digital Urology Journal
- Exstrophy & Epispadias
A good overall description of Classic BE, Epispadias and cloacal Exstrophy. Many photos and x-rays included of all variations of exstrophy.
- Find a Urologist : American Urology Association ( Canada & U.S. only)
- Guide to the Individual Education Plan (IEP) for your child. The IEP must always consider the child's need for assistive technology devices or services.
- Hospitals
- Imperforate Anus
- Individuals with Disabilities Education Act (IDEA)
Services that are mandated to provided by the school ie. catherization, colostomy, ileostomy, or urostomy changes are described as "Assistive Technology Devices".
- Latex Information
- Mitrofanoff
- Omphalocele and Gastroschisis
An overview including cloacal exstrophy info including photos of cloacal exstrophy before and after repairs.
- Protecting Students with Disabilities
Section 504 of the Rehabilitation Act for U.S. citizens. Your child's rights regarding disaibilities and their education.
- Supra Pubic Catheter Info and Care
- Surgical Information on Epispadias Repair (In Spanish)
- Ureteral Reimplant Surgery
- Urinary Diversions and Neobladder
- Urinary Tract Anatomy
- Urinary Tract Infections (symptoms and treatment) (more)
- Urine Culture
- Urodynamics
- Urogenital Reconstruction, Penile Epispadias
- VCUG
- Vesicoureteral Reflux (+ more)
- Voiding CystoUrethroGram (Voy-ding Sis-toe-you-wreath-row-gram) (more)

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© 2008 The Association for the Bladder Exstrophy Community, all rights reserved.
A 501(c)(3) nonprofit organization. |
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