Research

A-BE-C is committed to participating in research to further the treatment options for bladder exstrophy.

ABEC | Seattle Children's Study
ARTICLE: Patient-reported outcomes in adult females with bladder exstrophy

An article based on a survey conducted in 2019 by Seattle Children’s and A-BE-C regarding adult females with exstrophy and their long-term sexual, reproductive, and urinary outcomes has been published.

Study to be Presented at Societies for Pediatric Urology Fall Meeting
Study to be Presented at Societies for Pediatric Urology Fall Meeting

          You may remember a survey conducted earlier this year by Seattle Children’s and A-BE-C regarding…

Developing a Program for Transference of Complex Surgical Reconstructive Skills
Poster Presentation: The Uganda Exstrophy-Epispadias Complex Initiative

Developing a Program for Transference of Complex Surgical Reconstructive Skills

ABEC | Seattle Children's Study
Seattle Children’s and A-BE-C publish results of study surveying adult men with bladder exstrophy

Researchers at Seattle Children’s Hospital in collaboration with Association for the Bladder Exstrophy Community (A-BE-C) recently published results of a…

A chance encounter leads to groundbreaking bladder exstrophy research
A chance encounter leads to groundbreaking bladder exstrophy research

Professor Wei Cheng recalls the path that led to the discovery of the gene and mechanism responsible for bladder exstrophy…

Articles

THE EXSTROPHY EXPERIENCE: A NATIONAL SURVEY ASSESSING SEXUAL FUNCTION AND FERTILITY OUTCOMES IN ADULTS WITH BLADDER EXSTROPHY-EPISPADIAS COMPLEX

US- India Collaborative World Class Care for Children with BE

The exstrophy experience: A national survey assessing urinary continence, bladder management, and oncologic outcomes in adults

Patient-reported outcomes in adult females with bladder exstrophy: A study of long-term sexual, reproductive and urinary outcomes using social media

Pamela Artigas & Dr North Bring Light to Living with Bladder Exstrophy

Mother Shares Story of Caring for Child with Bladder Exstrophy

The Future of Bladder Exstrophy Care in China

Using social media for patient-reported outcomes: A study of genital appearance and sexual function in adult bladder exstrophy patients

THE EXSTROPHY EXPERIENCE: A NATIONAL SURVEY ASSESSING SEXUAL FUNCTION AND FERTILITY OUTCOMES IN ADULTS WITH BLADDER EXSTROPHY-EPISPADIAS COMPLEX

US Woman Helps Children in India with Bladder Exstrophy

Global surgical collaboration to treat bladder exstrophy-epispadias in India led to a larger geographical catchment area

Sidra collaboration ‘saves young lives’

Sidra & HMC team gives little Ghanaian a new leaf of life

Sidra, HMC hold highly complex urological surgeries in Collaboration with A-BE-C

Sidra Medicine and A-BE-C Collaboration Saves Two Young Lives

Ugandan Bladder Exstrophy-Epispadias Complex Initiative: a program for transference of complex surgical reconstructive skills

Ensuring our exstrophy‑epispadias complex patients and families thrive

Developing a Program for Transference of Complex Surgical Reconstructive Skills