Please select from the following:

• Resources by Age
  • Newborns with Exstrophy
  • Children with Exstrophy
  • Teenagers with Exstrophy (Bladder Exstrophy: The Teenage Survival Guide DVD)
  • Siblings of Exstrophied Children
  • Parents of Exstrophied Children
  • Adults with Exstrophy
    
• Financial and Medical Resources
  • Insurance Information
  • Wings of Hope
    
• Books, DVD's and Videos

Newborns with Exstrophy
The ABC will provide packets to parents, doctors and surgeons throughout the world. These packets contain information about the ABC, the benefits, a parent hotline and a glossary of terms.  Please contact us with the surgeons name and we will forward them these packets. If you would like to be added to the parent's hotline for future printings, please contact us!  Parents can download this packet online anytime.

Children with Exstrophy

• Youth Rally
• A Story About You....and the Boo-Boo on Your Bladder
  An eight page children's picture book written to teach children ages 3-6 about bladder exstrophy. Written by a fellow ABC member, Cathy Brehm. 
• This is Me!
  Written to help children begin to understand bladder exstrophy and its implications and to give children a tool to prepare themselves for interactions with people outside of their own family.
• Listserves

DVDs and Videos

• Presentations from the 2009 ABC/HEA International Exstrophy, Epispadias, & Hypospadias Conference Are Now Available On-Demand Online
• The Night Before DVD
• Bladder Exstrophy: The Teenage Survival Guide DVD
• Bladder Neck Reconstruction: Is Your Family Emotionally Ready for this Surgery?
• 2008 Johns Hopkins Hospital Seminar
• "Catheterization of Continent Urinary Stomas" - Johns Hopkins
• 2007 International Conference for Families Living with Exstrophy & Epispadias DVD
• 2005 International Conference for Families Living with Exstrophy & Epispadias DVD
• 2003 International Conference for Families Living with Exstrophy & Epispadias DVD
• 1991 Johns Hopkins Seminar