Please select from the following:

• Apparel
• Books
• DVDs and Videos
• Lending Library

Books

• A Story About You....and the Boo-Boo on Your Bladder
  An eight page children's picture book written to teach children ages 3-6 about bladder exstrophy. Written by a fellow ABC member, Cathy Brehm. 
• This is Me!
  Written to help children begin to understand bladder exstrophy and its implications and to give children a tool to prepare themselves for interactions with people outside of their own family.
• Living With Bladder Exstrophy
  This manuscript is the first to address the medical, psychosocial, and emotional aspects of bladder exstrophy in an extensive and detailed fashion. It combines the opinions and stories of family members with information from some of the country's leading healthcare experts on this condition, in order to provide every family with new ideas, different treatment options, increased information, and the support of knowing that they are not alone in their situation. By providing positive solutions to difficult problems, this book encourages hope for each family and child. Please note that this book comes FREE with your membership to the ABC. 
• Living with A Brother or Sister with Special Needs: A Book for Sibs
• Views from Our Shoes: Growing up with a Brother or Sister with Special Needs 

DVDs and Videos

• The Night Before DVD
• Bladder Exstrophy: The Teenage Survival Guide DVD
• Bladder Neck Reconstruction: Is Your Family Emotionally Ready for this Surgery?
• 2008 Johns Hopkins Hospital Seminar
• "Catheterization of Continent Urinary Stomas" - Johns Hopkins
• 2007 International Conference for Families Living with Exstrophy & Epispadias DVD
• 2005 International Conference for Families Living with Exstrophy & Epispadias DVD
• 2003 International Conference for Families Living with Exstrophy & Epispadias DVD
• 1991 Johns Hopkins Seminar

Lending Library
Current members of the ABC can borrow DVDs in the lending library for 30 days at no charge. Non-members pay $2.25 for shipping & handling. Currently available in the lending library as follows:

• 2008 Johns Hopkins Hospital Seminar
  • Helping Your Child Develop a Positive Body Image - Anne Mohl, Child Life Specialist
  • The Role of the Tunneled Epidural Catheter in Bladder Exstrophy Patients - Sabine Kost-Byerly, MD
  • Pelvic Floor in Bladder Exstrophy: What We Have Learned - Todd Purves, MD
  • My Exstrophy Experience - Jonathan Pierroz
  • Preparing for Bladder Neck Reconstruction - Marlo Eldridge, MSN, CPNP
  • My Child is Dry - Kimberly Hart
  • The Pelvis in Bladder Exstrophy - Paul Sponseller, MD
  • Complications of Newborn Exstrophy Closure - Anthony Schaeffer ,MD
  • ABC—Barbara Ward

• 1991 Johns Hopkins Seminar
  • Epispadias - Robert Jeffs, MD
  • When Things Don’t Always Turn Out So Well - John Gearhart, MD
  • Pelvic Floor - Paul Sponseller, MD
  • My Exstrophy Experience - Jarred Johnson
  • Questions & Answers - Robert Jeffs MD, John Gearhart, and Paul Sponseller, MD
  • Support Groups - Jeffrey Niezgoda, MD