The "Association for the Bladder Exstrophy Community" (ABC) is a non-profit organization that supports the bladder exstrophy community. We are not affiliated with any medical institution or group and do not give endorsements as to the quality of any medical facility or services provided by physicians or nurses.

This list is operated and maintained by the "ABC" and we scrutinize applicants as to their intentions. Patients, families, doctors and nurses who deal with bladder exstrophy will only be admitted. The "ABC" will not admit users for 'educational study purposes'. The "ABC" will not provide any of the information posted on the list/bulletin board to any other source (this includes providing your username, email address or any information to research groups or studies, doctors, etc.).

This list is run on a service provided by Topica (http://www.topica.com) and there are certain requirements and Terms of Service that will apply to all new subscribers. All users 
must provide a valid email address, first name, last name, age, zip code/postal code and country. Topica's terms of policies are outlined in full at the time of subscription. Specifically they state that they will not provide any of the personal information to a third party. However, aggregated user information that does not identify any user individually will be used to perform statistical analyses of the collective characteristics and behavior of Topica members and visitors, to measure overall demographics and interests regarding specific areas of the Topica domain and to analyze how and where to use their resources. They also use the aggregate data collected to inform their sponsors as to the number of people who have seen 
and "clicked" on their advertisement. In addition, Topica may compile and disclose aggregate information about its users for promotional or other purposes. For example, they might want to disclose that a certain percentage of our users are located within a particular geographic area or fall within a particular age range. 


Disclaimer: The "Association for the Bladder Exstrophy Community" (ABC) has provided this list as a service to interested patients, families or medical professionals. The "Association for the Bladder Exstrophy Community" disclaims any representation or warranty, express or implied, concerning the accuracy, completeness or fitness for a particular purpose of the information contained on this list. Individuals accessing this information assume full responsibility for the use of the information and understand that the "Association for the Bladder Exstrophy Community" are not liable or responsible for any damage, claim or loss arising from the use of this information. Products or services mentioned in the list/bulletin board do not constitute recommendations or endorsement by the ABC. The views and opinions of those who post messages on the list/bulletin board do not necessarily reflect those of the ABC. Readers are recommended to confirm the information contained herein with other sources.


Rules: No spamming.....do not use the members email in any way to solicit 'junk' mail.

 

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