Conference Agenda

Click here for full program with session details.

 

 

 

 

 

Friday, June 8, 2018 – MORNING SESSIONS 

Cincinnati Children’s, Burnet Campus

TimeTopicSpeaker
8:00 – 9:00amRegistration and Breakfast
8:30 – 9:00amWelcomePamela Block

Executive Director, A-BE-C

9:00 – 9:45am

(30 mins lecture,

15 mins Q/A)

Understanding Chronic Kidney Disease and What it Means for my Child as S/He Becomes and AdultDavid Hooper, MD, MS CCHMC Nephrology
9:45 – 10:30am

(30 mins lecture,

15 mins Q/A)

Understanding Nutritional Needs in the Following Circumstances:

  1. Setting of CKD
  2. Upcoming Surgery and Periop
  3. Chronic Constipation
Renal Dietitians:

Susan Tulley Nehus, MPH, RD, CSP, LD and Christine O’Connor, RD, CSR, LD

10:30 – 10:45amBreak
10:45 – 11:30am

(30 mins lecture,

15 mins Q/A)

Transitional Care for Adults with Congenital ConditionsPramod Reddy, MD – CCHMC Urology and Ayman Mahdy, MD, PhD – University of Cincinnati
11:30 –12:30pmLunch

Friday, June 8, 2018

Cincinnati Children’s, Burnet Campus

AFTERNOON SESSIONS

TimeTopicSpeaker
12:30 – 1:15pm

(30 mins lecture, 15 mins Q/A)

Tissue Engineering and Future Reconstructive OptionsMichael Helmrath, MD CCHMC Pediatric Surgery
1:15 – 2:30pm

(30 mins lecture, 15 mins Q/A)

Long Term Outcomes of Continence in Patients with Bladder ExstrophyAndrew Strine, MD CCHMC Urology
2:30 – 2:50pmBreak
2:50 – 3:30pmBreakout Session I
Family and Child Experience of Surgical ReconstructionEthan Newman
Teenager Experience of Living with Bladder ExstrophyVincent Thomas
Living with Bladder Exstrophy – Adult PerspectiveJoe Redman
3:45 – 4:30pmBreakout Session II
Family and Child Experience of Surgical ReconstructionEthan Newman
Teenager Experience of Living with Bladder ExstrophyVincent Thomas
Living with Bladder Exstrophy – Adult PerspectiveJoe Redman
4:45pmBuses depart for Hotel

BUS LEAVES FROM BURNET CAMPUS PROMPTLY at 4:45pm

Saturday, June 9, 2018

Cincinnati Children’s Burnet Campus

TimeTopicSpeaker
8:00 – 9:00amBreakfast
9:00 – 9:45amFAQ about Sexual and Reproductive Function for Individuals with Bladder ExstrophyFemales – Lesley Breech, MD CCHMC Pediatric and Adolescent Gynecology

Males – Brian VanderBrink, MD CCHMC Urology Faculty

9:45 – 10:00amExhibitor Break
10:00-10:15amCourage to Shine Award presented by Tom Exler

Recipient: Thomas Ludlow

10:15 – 11:30amTeen Panel – Moderated by Emily Haddad, LCSW and Barbara Neilson, MSW, RES. Dip. S.W., RSW
11:30 – 12:15pmLunch
12:15 – 1:00pm

(30 mins lecture, 15 mins Q/A)

Risk of Malignancies in Reconstructed BladdersW. Robert DeFoor, Jr., MD, MPH CCHMC Urology
1:00 – 1:20pmSurgical Anesthesia and Pain Management after Surgery and Long TermBobby Das, MD CCHMC Anesthesia
1:20 – 1:50pmFamily Activity – Discharge Binder AssemblyDebbie Reeves, Lena Riley, Lisa Smith, Paige Pelle, April Humphreys
2:00pmAdjourn – BUS LEAVES FROM BURNET CAMPUS PROMPTLY at 2:00pm