2019 Conference Videos Now Available!
The 2019 International Exstrophy Conference was hosted by Children’s Hospital Los Angeles (CHLA), and sessions focused on the various ways coping plays a role in living with exstrophy.
CHLA graciously recorded the sessions so we could make them available to our A-BE-C community.
Presented by Pamela Artigas, Executive Director of A-BE-C
Intro & Overview
Presented by Evalynn Vasquez, MD
Life With Exstrophy
Presented by April Gimlen & Ana Gimlen LaFond
Transitioning to Adult Care
Presented by Dan Wood, Phd
Navigating the School System
Presented by Tavo Zavala & Paige Sable, LCSW
Disclosure of Exstrophy
Presented by Barbara Neilson, MSW
Importance of Research
Presented by Anthony Schaeffer, MD
Coping With Pain
Presented by Alyson Herme, PhD, Alvina Rosales, PhD & Rubi Buxto
Courage to Shine Winner