Patients, families and physicians from around the globe are collaborating to provide better care and better quality of life for people born with bladder exstrophy.
Join us in Philly this summer for an exciting three days as we come together to connect, learn and collaborate!
"Before today, my cousin had never met anyone else with bladder exstrophy. Watching her with other little girls just like her is amazing!" - 2016 conference participant
"All of the topics covered were very valuable for us." - 2015 conference participant
"Our son loved the breakout session! He's still talking about it. It gave him a huge confidence boost to talk with peers." - 2015 conference participant
"Presentations were inspiring and gave me a lot of good ideas. They also answered most of the question that I wondered about." - 2016 conference participant
We're putting the final touches on the complete agenda and confirming all the speakers, who will include:
Dr. Joseph Borer
Director of the Bladder Exstrophy Program and Director of Neurourology and Urodynamics at Boston Children's Hospital
Dr. Asseem Shulka
Director of Minimally Invasive Surgery, Department of Urology at Children's Hosptial of Philadelphia and Associate Professor of Surgery at University of Pennsylvania's Perelman School of Medicine
Dr. John Gearhart and Dr. Heather De Carlo
Dr. Gearhart is Professor and Director of Pediatric Urology at Johns Hopkins Childrens Center, and Dr. De Carlo is Assistant Professor of Pediatric Urology and Director of Pediatric Urology Research at the Johns Hopkins School of Medicine and the James Buchanan Brady Urological Institute
Dr. Paul Merguerian
Division Chief of Urology at Seattle Children's and Professor of Urology at the University of Washington
Educational sessions from experts, fun activities for children and siblings and opportunities to connect and collaborate in a relaxed setting are all part of the conference. Highlights include:
6 to 8 pm, Friday, June 9 - Registration & Pizza Party at Sheraton Philadelphia University City Hotel
7:30 to 8 am, Saturday, June 10 - Registration & Breakfast at Colket Translational Research Building on the main campus of CHOP
8 am to 5 pm, Saturday, June 10 - Conference Sessions (lunch included). Bowling for kids 8 and up from 1 to 5pm (transportation provided).
8 to 11 am, Sunday, June 11 - Conference Sessons and Group Photo
Children's Hospital of Philadelphia (CHOP) is hosting the conference on its campus in partnership with A-BE-C.
Sessions will be held at the Colket Translational Research Building on the main campus of CHOP at 3501 Civic Center Boulevard, Philadelphia, PA 19014
Conference Hotel - Sheraton Philadelphia University City Hotel
Book early to take advantage of the conference rate from $159/night, subject to availability. Must book before May 10, 2017
Be sure to state that you are with the Association for the Bladder Exstrophy Community to receive the special rate.
A big thank you and welcome to the 2017 Exstrophy Conference sponsors. Coloplast is maintaining a long tradition of support to the bladder exstrophy community. Welcome to Safe n Simple, an innovator, developer and marketer of new medical products and to Verathon. Verathon's BladderScan® products are the standard of care for portable ultrasound bladder volume measurement. Funds raised from the Texas Bladder Exstrophy's Support Group's recent 3-on-3 Basketball Tournament are funding the kids events at the conference.
Welcome to Burmans Medical Supplies, McKesson, ABC Medical, Compact Cath and Tynkle Tikes.
Attendees come to the annual International Exstrophy Conference from across the United States and around the globe to share their stories, meet doctors and professionals who can guide them in their exstophy journey.
A-BE-C is the only organization worldwide that is supporting people affected by bladder exstrophy. Approximately 350 people are expected to attend this year's conference and our speakers include world-renowned physicians from major hospitals. If you'd like to connect and support this community of people, become a sponsor!