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August 2015

Webinar – Transitioning from Home to School: A journey towards independence

August 27, 2015 @ 1:00 am - 2:00 pm UTC-4
Live Webinar

Our friends at ABC Medical are hosting this webinar at no charge and have extended an special invitation to the A-BE-C community. Topic: What You Need to Know About College Life with a Disability Host: Keith Jones, President & CEO of ABC Medical Presenters: Margaret Stran, Associate Director of Adapted Athletics Program, University of Alabama Prof. Ted Fay, Senior Adviser to ECAC on Inclusive Strategy Model Ryan Martin, Professional Wheelchair Basketball Player, Founder of the Ryan Martin Foundation Samantha Greenberg, Current Graduate Student at Temple…

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Live Webinar – Long Term Management of Bladder Exstrophy

August 31, 2015 @ 8:00 pm - 9:30 pm UTC-4
Live Webinar

Featuring Paul Merguerian, MD, MS, Division Chief, Urology, Seattle Children’s; The Michael Mitchell Endowed Chair in Pediatric Urology Professor of Urology, University of Washington.

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May 2019

Third International Bladder Exstrophy Boot Camp (for healthcare providers)

May 7, 2019 - May 9, 2019
Maritime Conference Center, 692 Maritime Boulevard
Linthicum Heights, MD 21090 United States
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bladder exstrophy, bootcamp, doctors bootcamp, Johns Hopkins

The exstrophy-epispadias complex is a spectrum of rare birth defects with a wide range of management paradigms and outcomes. The complexity of these cases cannot be overstated, and quite often, a multidisciplinary approach is necessary to reach surgical goals and address psychosocial needs. From the Johns Hopkins University, Brady Urological Institute, Robert D. Jeffs division of Pediatric Urology, we invite you to learn the intricacies of exstrophy management at the Bladder Exstrophy Bootcamp. Experts from across the nation and multiple disciplines…

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2019 Spring Meeting of the California BEST

May 18, 2019 @ 11:30 am - 3:30 pm PDT
1043 Cowper Street, Palo Alto, CA 94301, 1043 Cowper Street
Palo Alto, CA 94301 United States
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BEST, Bladder Exstrophy Support Team, California BEST, bladder exstrophy

The 2019 Spring Meeting of the California Bladder Exstrophy Support Team (California B.E.S.T.) will be held on Saturday, May 18th starting at 11:30 a.m. at the home of Pat and Doug Kreitz in Palo Alto, California.

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June 2019

2020 International Exstrophy Conference

June 21, 2019 - June 23, 2019
Johns Hopkins Baltimore, MD United States + Google Map
2020 Bladder Exstrophy Conference Host

Save the Date! Johns Hopkins Baltimore, MD June, 2020 For updates on next year’s conference and early registration information, become a subscriber and follow us on Facebook!

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July 2019

Ostomy Youth Camp – Canada

July 7, 2019 - July 12, 2019
Easter Seals Camp Horizon,
Bragg Creek, Alberta AB T0L 0K0 Canada
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Summer will be here before you know it and Ostomy Youth Camp - Canada wants you to think about the best camp for your young patients. There is a place for young estimates to be active, creative, playful, social, and most importantly, know they're not alone. The Ostomy Canada Society hosts a camp for children between the ages 9 – 18 who have had or who will have bowel or bladder diversionary surgery (such as an ostomy) or who have related special…

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2019 Youth Rally

July 8, 2019 - July 13, 2019
University of Washington Seattle, WA United States + Google Map

Each year, the YOUTH RALLY hosts kids and teens living with conditions of the bowel and bladder at a college campus for a five-night one of a kind camp experience that promotes independence, self-esteem, learning, friendship and fun! The 2019 Youth Rally will take place July 8-13 at the University of Washington in Seattle. Apply here!

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September 2019

Annual Meeting – Support Group Bladder Exstrophy / Epispadias

September 13, 2019 - September 15, 2019
Hostel Oberbernhards Oberbernhards, Germany + Google Map

The annual meeting 2019 of the self-help Bladder Exstrophy / Epispadias Self-Help Group of Germany will be held September 13-15th.

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