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Barbara Neilsen is a clinical social worker in pediatric urology, now in her 28th year of providing clinical social work services at Sick Kids in Toronto, Ontario.

Specialty – Ms. Neilsen’s practice currently includes patients and families with bladder exstrophy, cloacal exstrophy and epispadias, as well as those with DSDs and other major congenital urological anomalies.

Other – In 1997, Ms. Neilsen started the original bladder exstrophy online listserve support group that provided the first psychosocial support for many families globally. She has been a strong supporter of A-BE-C since its inception. She participates in inter-professional practice, education and research relating to her areas of expertise. She is a passionate believer in family centered care and peer support, and is a strong advocate for her patients and their families.