Privacy Policy

Association for the Bladder Exstrophy Community (A-BE-C) has created this Privacy Policy to explain why we collect particular information and how we will protect your personal privacy within our website. The following discloses our information gathering and dissemination practices for the website located at the URL “www.bladderexstrophy.com.”

In order to fully understand your rights we encourage you to read this Privacy Policy as well as our Terms of Use. A-BE-C reserves the right at any time and without notice to change this Privacy Policy simply by posting such changes on our Site. Any such change will be effective immediately upon posting.

Because we want to demonstrate our commitment to your privacy, this Privacy Policy notifies you of

  1. What personally identifiable information of yours is collected through the Site;
  2. Who collects such information;
  3. How such information is used;
  4. With whom your information may be shared;
  5. What choices you have regarding collection, use and distribution of your information;
  6. What kind of security procedures are in place to protect the loss, misuse or alteration of information under our control;
  7. How you can correct any inaccuracies in your information.

Questions regarding this statement should be directed to A-BE-C by sending an email to [email protected]. Please reference this Privacy Policy in your subject line.

Information We Collect and How We Use It

We collect two types of information, Standard web server traffic pattern information, and information collected through our registration forms. Standard web server traffic pattern information is comprised of general traffic, site usage, and length of stay information, which is collected and stored in log files. This type of information is shared externally, if at all, only on an aggregated basis.

Our registration forms require users to give us contact information that may include name, email address, format preference (HTML vs. Text), address, interests, and similar information. We use this information to contact you should there be a question about your donation and we also use this information to personalize communications to you to keep you informed about our programs and progress. If you do not wish to receive these communications, or if you would like to change the frequency or types of communications you receive from us, simply write to us at [email protected] and we will be pleased to respect your wishes.

Internet Protocol Address

We collect an IP address from all visitors to our Site. An IP address is a number that is automatically assigned to your computer when you use the Internet. We use IP addresses to help diagnose problems with our server, administer our Site, analyze trends, track users’ movement, gather broad demographic information for aggregate use in order for us to improve the site, and deliver customized, personalized content. IP addresses are not linked to personally identifiable information.

Use of “Cookies”

Cookies may be used to enhance your experience while using our Site. Cookies are pieces of information that some Websites transfer to the computer that is browsing that Website and are used for record-keeping purposes at many Websites. Use of cookies makes Web-surfing easier by performing certain functions such as saving your passwords, your personal preferences regarding your use of the particular Website and to make sure you don’t see the same ad repeatedly. Many consider the use of cookies to be an industry standard.

Your browser is probably set to accept cookies. However, if you would prefer not to receive cookies, you can alter the configuration of your browser to refuse cookies. If you choose to have your browser refuse cookies, it is possible that some areas of our Site will not function properly when you view them.

Security

All donation information provided to A-BE-C is transmitted using SSL (Secure Socket Layer) encryption. SSL is a proven coding system that lets your browser automatically encrypt, or scramble, data before you send it to us. We also protect account information by placing it on a secure portion of our Site that is only accessible by certain qualified employees or agents of A-BE-C. Unfortunately, however, no data transmission over the Internet is 100% secure. While we strive to protect your information, we cannot ensure or warrant the security of such information.

Other Websites

Our Site contains links to other websites. Please note that when you click on one of these links, you are entering another Website for which A-BE-C has no responsibility. We encourage you to read the privacy statements on all such sites as their policies may be different than ours.

Contacting the Website

www.bladderexstrophy.com is produced and maintained by A-BE-C. If you have any questions about this Privacy Policy, the practices of this Site, or your dealings with this Site, you can contact:

[email protected]
Association for the Bladder Exstrophy Community
204 37th Avenue North, Suite 157
Saint Petersburg, FL 33704
USA