Topics and Speakers

Exstrophy Conference 2016

The 2016 conference is all about patients and their families. The conference program, with details will be available soon.

Topics will include:

  • Developing positive self-identity with bladder exstrophy
  • Effectively engaging with medical providers throughout life
  • Appreciating and promoting resiliency in individuals and families affected by bladder exstrophy
  • The patient experience: what patients want doctors to know!
  • Advocating for patients and families: why it’s important and how to do it
  • Ask the doctors and other experts: your questions answered
  • Research updates
  • And more!

Speakers will include:

  • Brad Kropp, MD, Pediatric Urologist, Division of Pediatric Urology, OU Children’s Physicians
  • William Reiner, MD, Pediatric Urologist, Division of Pediatric Urology, University of Oklahoma Children’s Physicians
  • Barbara Neilson, MSW, RES. Dip.S.W., RSW, Clinical Social Worker, Pediatric Urology, The Hospital for Sick Children
  • Brittany Freeman and Thomas Exler, adults with bladder exstrophy
  • Cindy Coney, Ambassador of Hope and Resiliency
  • Diane Price LCSW, Clinical Social Worker, Department of Urology, Boston Children’s Hospital
  • Doug Canning, MD, Chief of the Division of Urology, Children’s Hospital of Philadelphia
  • John Gearhart, MD, Professor and Director of Pediatric Urology at Johns Hopkins Children’s Center
  • Antoine Khoury, MD, Chief of Pediatric Urology, Children’s Hospital of Orange County and Children’s Urology Center, University of California-Irvine Medical Center
  • Primod Reddy, MD, Chief of Pediatric Urology, Cincinnati Children’s Hospital
  • Pamela Block, Executive Director, Association for the Bladder Exstrophy Community