Bladder exstrophy is a complex condition that requires specialized care but access to that care is not equal around the world.
Through global partnerships, education, and support, A-BE-C is working to change that.
Together with medical teams and local partners, we are improving access to life-changing treatment and long-term care for children and families across the globe.
A-BE-C’s Global Care Initiative focuses on expanding access to specialized bladder exstrophy treatment in underserved regions.
This work goes beyond surgery, it includes:
Since 2009, a dedicated team of surgeons, anesthesiologists, social workers, and healthcare professionals from India and the United States have worked together to provide complex surgical care for children with bladder exstrophy.
This collaboration is known as the International Bladder Exstrophy Collaborative (IBEC).
IBEC brings together leading institutions, including:
This collaboration combines surgical expertise, coordinated care, and long-term follow-up leading to improved outcomes for patients.
Since 2014, A-BE-C has participated in the Annual Operative Workshop on Exstrophy and Epispadias Complex in Ahmedabad, India.
This program is unique because it:
A-BE-C expanded its Global Care Initiative to Uganda in 2015, bringing critical support to individuals living with bladder exstrophy in resource-limited settings.
Through donor support, A-BE-C has:
While meaningful progress has been made, many individuals still lack access to:
Your support makes this work possible.
Through global collaboration, A-BE-C is helping:
Many families have successfully created bathroom plans that allow their children to thrive at school. With the right tools, support, and communication, your child can feel confident, prepared, and included in their school environment.
Many families have successfully created bathroom plans that allow their children to thrive at school. With the right tools, support, and communication, your child can feel confident, prepared, and included in their school environment.