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A-BE-C Blog
Find a Center of Excellence
Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2023 Annual Conference
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research
    • Support
    • Videos
    • Webinars
  • OUR IMPACT
    • Our Why
    • Armenia Medical Mission
    • India
    • Uganda
    • BE Dry
    • What’s Next?
  • ABOUT US
    • Leadership
    • Advisory Council
    • Our Story
    • Contact
  • SHOP
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Fundraise for A-BE-C
    • Physician Registration for India Workshop

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A Story About You was written for the young child (aged 3 to 6) who is becoming curious about bladder exstrophy and their physical differences. With delightful illustrations and age-appropriate language, A Story About You introduces the child to bladder exstrophy using the approach that all of our bodies are unique and special. The book explains, in simple terms, how the bladder works, what exstrophy is, and the possibility of future surgery as the child grows. By design, the book is general, giving caregivers the opportunity to tailor discussion to the child’s specific circumstances.

A Story About You lays the groundwork for good conversation and the development of healthy self image. Help your child learn that BE is something that makes them unique and special!

A Story About You can also be shared with siblings or trusted friends to help them understand their loved one’s differences.

Available in Boy and Girl versions.

If you face financial hardship and would like a copy of the book, please contact us.

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Association for the Bladder Exstrophy Community

505 Beachland Blvd. Ste: 1-#180
Vero Beach, FL 32963

Email: [email protected]

TaxID: 68-0252009

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