Register by May 15th for the 2017 Exstrophy Conference

The 2017 International Exstropy Conference is just two months away! Register by May 15th. more

Seattle Children's seeking adult males with bladder exstrophy to survey for study

Bladder exstrophy is a complex condition occurring in about 1 in 50,000 children and often requiring multiple surgical procedures throughout a person’s life.  ... more

Johns Hopkins seeking participants with bladder exstrophy for clinical trial

The pediatric urology team at Johns Hopkins is looking for bladder exstrophy patients to participate in a clinical trial. Participants must have a history of ... more

Meet the Texas Bladder Exstrophy Support Group

In 2015, a small group of three families came together to found the Texas Bladder Exstrophy Group. We are an online support group open to families in the ... more

Families in India learn post-surgical care for bladder exstrophy

Among the nearly 100 children who received checkups and medical procedures for bladder exstrophy at the operative workshop in India in January 2017, more than ... more

Nearly 100 exstrophy patients receive treatment in Ahmedabad, India

The 9th annual Operative Workshop on Exstrophy and Epispadias Complex got underway just after the first of the year in Ahmedabad, India. Nearly 100 exstrophy ... more