You are not alone
Bladder exstrophy is a rare birth defect in which the bladder has not formed correctly at birth. In most cases, the bladder and genitals are split in half, turned inside out and sit outside the body. If you can imagine a balloon that has been cut in two, opened up so that the inside of the balloon is visible, you will have a picture of what has happened.
Bladder exstrophy is treated with surgery. It is critical to work with experienced surgeons and other providers who have the knowledge, skills and experience to treat exstrophy patients through all stages of life.
Association for the Bladder Exstrophy Community (A-BE-C) is working to make the highest standards of treatment available to all who are affected by bladder exstrophy. Whether you are a parent of child or an adult with this condition, or a member of the medical community, A-BE-C is here for you.