The 2026 Conference is proudly hosted in conjunction with Children’s Hospital Los Angeles!

Cost

Individual: $55 ($65 after 5/31/26)
Families: $85 ($95 after 5/31/26)

Weekend Agenda

Friday, July 17, 2026

Adult Patient Session

2:00pm – 5:00pm

The Adult Patient Advisory Council will host an adult patient session to help build connections within our adult patient community, identify age-related needs, and uncover ways to improve the management of exstrophy in adulthood. This session is for adult patients only (18+) with BE, CE, epispadias, or related conditions.

address401 S. San Fernando Blvd, Burbank, CA 91502

 

Welcome Party and Registration (all attendees)

6:00pm – 8:00pm

address401 S. San Fernando Blvd, Burbank, CA 91502

Saturday, July 18, 2026

Breakfast/Registration

7:15am – 8:00am 

Conference Sessions

8:00am – 4:00pm

Children’s Hospital Los Angeles
4650 Sunset Blvd
Los Angeles, CA 90027
Session details and times are still being finalized. Shuttles will be provided.

Family Night

Family Bowling night – details to follow

Accommodations

address401 S. San Fernando Blvd, Burbank, CA 91502

pho+1 818-509-7964

We have a room block reserved for July 17, 2026 through July 19, 2026. Booking your room is simple, just make your reservation through the “book now” button to receive our group rate.

Please note: This group rate is available through Wednesday, June 17th, 2026.

2026 Conference Registration

To ensure all our families and guests have the best experience possible, we are pleased to announce that Spanish interpretation services will be available throughout the conference on July 18th. Simply indicate your interest in this service during the registration process below.

Para asegurar que todas nuestras familias e invitados tengan la mejor experiencia posible, nos complace anunciar que habrá servicios de interpretación al español disponibles durante toda la conferencia del 18 de julio. Simplemente indique su interés en este servicio durante el proceso de registro que aparece a continuación.