Association for the Bladder Exstrophy Community is excited to announce the formation of our Adult Patient Advisory Council (APAC)! Our hope is that this council will serve as a vital link between our organization and the adult patient community, to improve our resources.
Our initial projects will focus on developing tools and resources specifically designed to address the needs of adult patients living with conditions along the bladder exstrophy-epispadias-cloacal exstrophy spectrum. Additionally, we are committed to expanding our projects in the future to address a wider range of concerns that affect our pediatric community.
Interested in contributing to the Adult Patient Advisory Council? Send us a message and we will be in touch!