September 2019
Annual Meeting – Support Group Bladder Exstrophy / Epispadias
The annual meeting 2019 of the self-help Bladder Exstrophy / Epispadias Self-Help Group of Germany will be held September 13-15th.
Find out more »June 2020
2020 International Exstrophy Conference
Save the Date! Johns Hopkins Baltimore, MD June 26- 28, 2020 For updates on next year’s conference and early registration information, become a subscriber and follow us on Facebook!
Find out more »July 2020
The 2020 B.E.S.T. (Bladder Exstrophy Support Team) Campout
California Bladder Exstrophy Support Team (California B.E.S.T.)'s Annual Campout is a wonderful event at one of the most breathtaking locations on earth, beautiful Lake Tahoe where we gather each year for a weekend of fun. The campground is found in Toiyabe National Forest in South Lake Tahoe. It is centrally located in South Lake Tahoe and is within walking distance to Lake Tahoe. Our campout provides planned activities, crafts, organized potlucks for Friday and Saturday dinners, and speakers. If camping…
Find out more »Great Lakes Chapter 12th Annual Summer Campout
Join us for a fun weekend to get to know other families living with exstrophy!
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