May 2019
Third International Bladder Exstrophy Boot Camp (for healthcare providers)
The exstrophy-epispadias complex is a spectrum of rare birth defects with a wide range of management paradigms and outcomes. The complexity of these cases cannot be overstated, and quite often, a multidisciplinary approach is necessary to reach surgical goals and address psychosocial needs. From the Johns Hopkins University, Brady Urological Institute, Robert D. Jeffs division of Pediatric Urology, we invite you to learn the intricacies of exstrophy management at the Bladder Exstrophy Bootcamp. Experts from across the nation and multiple disciplines…
Find out more »July 2019
Ostomy Youth Camp – Canada
Summer will be here before you know it and Ostomy Youth Camp - Canada wants you to think about the best camp for your young patients. There is a place for young estimates to be active, creative, playful, social, and most importantly, know they're not alone. The Ostomy Canada Society hosts a camp for children between the ages 9 – 18 who have had or who will have bowel or bladder diversionary surgery (such as an ostomy) or who have related special…
Find out more »2019 Youth Rally
Each year, the YOUTH RALLY hosts kids and teens living with conditions of the bowel and bladder at a college campus for a five-night one of a kind camp experience that promotes independence, self-esteem, learning, friendship and fun! The 2019 Youth Rally will take place July 8-13 at the University of Washington in Seattle. Apply here!
Find out more »Great Lakes Chapter 11th Annual Summer Campout
Join us for a fun weekend to get to know other families living with exstrophy!
Find out more »August 2019
The 2019 B.E.S.T. (Bladder Exstrophy Support Team) Campout
California Bladder Exstrophy Support Team (California B.E.S.T.)'s Annual Campout is a wonderful event at one of the most breathtaking locations on earth, beautiful Lake Tahoe where we gather each year for a weekend of fun. The campground is found in Toiyabe National Forest in South Lake Tahoe. It is centrally located in South Lake Tahoe and is within walking distance to Lake Tahoe. Our campout provides planned activities, crafts, organized potlucks for Friday and Saturday dinners, and speakers. If camping…
Find out more »September 2019
Annual Meeting – Support Group Bladder Exstrophy / Epispadias
The annual meeting 2019 of the self-help Bladder Exstrophy / Epispadias Self-Help Group of Germany will be held September 13-15th.
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