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  • Great Lakes Campout

    2021 Great Lakes Chapter 12th Annual Summer Campout

    Eby’s Pines RV Park & Campground Bristol, Indiana

    You are invited to join us for a weekend campout for anyone dealing with bladder exstrophy, cloacal exstrophy, epispadias and hypospadias and their families and friends. This is a great way to connect with other families, share in similar experiences and know that you are not alone!

  • 2022 International Exstrophy Conference

    Maritime Conference Center 692 Maritime Boulevard, Linthicum Heights, MD, United States

    Proudly hosted in conjunction with Johns Hopkins

  • Youth Rally 2022 (Virtual)

    CA, United States

    Youth Rally will be in a virtual setting again in 2022. While we’d much rather be on-site, we’re excited to…

  • B.E.S.T. Campout

    Tahoe Valley Campground 1175 Melba Dr, South Lake Tahoe, CA, United States

  • Great Lakes Campout

    2025 Great Lakes Chapter 16th Annual Summer Campout

    Eby’s Pines RV Park & Campground Bristol, Indiana

    You are invited to join us for a weekend campout for anyone dealing with bladder exstrophy, cloacal exstrophy, epispadias and hypospadias and their families and friends. This is a great way to connect with other families, share in similar experiences and know that you are not alone!