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Texas Bladder Exstrophy Group 

Bladder Exstrophy India

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Bladder Exstrophy Houston

Parents of UK children born with bladder exstrophy

Bladder and Cloacal Exstrophy Awareness and Support 

Bladder and Cloacal Exstrophy: My son has Exstrophy 

Bladder Exstrophy and Epispadias 

Bladder Exstrophy Survivors Group