Decades of experience in the care of patients with bladder exstrophy

The Boston Children’s Hospital Bladder Exstrophy Program specializes in the care of children with bladder exstrophy, a rare and complex birth defect in which the bladder is turned “inside out.” As an established and dedicated program within the Department of Urology, our team has decades of experience performing surgeries and managing the care of patients with bladder exstrophy. In addition to our Urology team, care of children with bladder exstrophy is supported by experts in AnesthesiologyRadiologyMaternal Fetal Care, and Orthopedics.

Boston Children’s Hospital News

Boston Children's Hospital

Meet Henry

Just a few months into his young life, Henry has traveled from the Netherlands to Utah to Massachusetts — and has gone from being a medical mystery to making a best friend with the same rare condition. It’s all part of his ongoing with journey with bladder exstrophy.

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MIBEC (Multi Institutional Bladder Exstrophy Consortium)

The MIBEC consortium brings together the country’s top pediatric urologists from Children’s Wisconsin, Children’s Wisconsin of Philadelphia, and Boston Children’s. The goal of this multi-center team is to improve surgical techniques to restore the cosmetic appearance and function of the urinary and reproductive tract, teach new physicians and colleagues world-wide, and report on improved patient outcomes and quality of life.

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Boston Children’s Bladder Exstrophy Handbook

A must have resource guide! Get the ebook

Boston Children's Hospital

Boston Children's Hospital

Boston Children’s Hospital
Hunnewell, 3rd Floor
300 Longwood Avenue
Boston, MA 02115

Phone: 866-907-2619
Fax: 617-730-0474

For families residing outside of the United States, please contact Boston Children’s Global Services.

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Boston Children’s Hospital on the A-BE-C Blog

8 U.S. hospitals are best-in-class for bladder exstrophy

The Association for the Bladder Exstrophy Community (A-BE-C) wants to shorten the time it takes families to find complete and…

Mental health providers join A-BE-C’s board of advisors

We are pleased to announce that three mental health providers have joined the advisory board of the Association for the…