Among the top centers in the nation for primary and reoperative surgery

The Division of Pediatric Urology at Johns Hopkins Children’s Center is among the top centers in the nation for primary and reoperative surgery of bladder exstrophy, one of the most severe congenital birth defects. We provide comprehensive and compassionate care to diagnose and treat all childhood urological problems in patients around the world.

John’s Hopkins News

Conquering Cloacal Exstrophy

On May 5, 2010 — their five-year-wedding anniversary — Meagan Cline, a nurse, and Brandon Cline, a science teacher, went for a routine prenatal ultrasound. The Mississippi couple, who’d been struggling with infertility, was expecting a child and eager to find out if they were having a boy or a girl. Instead of the baby’s gender, the ultrasound brought a far less welcome revelation: the baby had cloacal exstrophy (CE), a rare birth defect.

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John’s Hopkins on the A-BE-C Blog

An Exstrophy Journey to India

Rachel Althizer is traveling with A-BE-C for the 2023 International Exstrophy Workshop in Ahmedabad, India, as a social worker to assist children and families with exstrophy as they prepare for surgery.

Dr. John Gearhart Receives 2022 Humanitarian Award

A-BE-C recently presented its Richard W. Grady Humanitarian Award to John P. Gearhart, M.D., Johns Hopkins Professor of Pediatrics and Urology. The distinguished award was presented during the 2022 International Exstrophy Conference in Baltimore, MD.

Re-Released! 2016 International Exstrophy Conference Videos

Sessions from the 2016 conference focused on fertility and sexual health for those with bladder exstrophy, research updates, transitional care, how to advocate for school-age children and more.

Poster Presentation: The Uganda Exstrophy-Epispadias Complex Initiative

Developing a Program for Transference of Complex Surgical Reconstructive Skills

8 U.S. hospitals are best-in-class for bladder exstrophy

The Association for the Bladder Exstrophy Community (A-BE-C) wants to shorten the time it takes families to find complete and…

Failed Primary Exstrophy Closure Webinar Recording

Dr. Gearhart provides details about what makes a successful primary exstrophy closure, why some closures fail, how to prevent failed closures, the types of failures and the treatment of failed closures. 

Webinar recording – Preparing your Child for Surgery

In this two-part webinar, Dr. Marlo Eldridge shares her deep experience and expertise and offers specific tips and insights to parents and providers.