- Who attends the International Bladder Exstrophy Conference
Patients, families and healthcare professionals from around the world who are impacted by bladder exstrophy.
- Why should I attend?
You will have the opportunity to attend educational sessions led by experts, participate in fun activities for children and families, and have opportunities to connect and collaborate with other families and individuals in a relaxed setting. Our breakout sessions will give you the opportunity to collaborate with your peers, other families and members of the medical community.
- What can I expect to take home from the conference?
Lasting connections with other families with bladder exstrophy, a resource binder, and lots of insights and information about coping including tips for mental and emotional wellness.
- How do I register?
You can register online via the registration form.
- What does registration include?
Attendee registration includes: • Access to more than 20 conference and breakout sessions • Networking with bladder exstrophy individuals, families and healthcare professionals • Pizza party on Friday, coffee, snacks and lunch on both Saturday and Sunday • Childcare for potty trained children • Special event for children ages 8+ on Saturday afternoon • Resource binder at the conclusion of the event
- What if I, or someone in my group, has special needs (travel, dietary, etc)?
Please email us listing your specific needs and we will do our best to make the necessary accommodations.
- Is there childcare available?
Childcare and activities will be available for children ages 3 and above. The room will be staffed by certified volunteers. Please arrive at the conference location and staff will direct you to the childcare room. Parents will need to bring ID and check their children in and out. Parents, also be sure to bring your cell phone and provide the number so the care providers can reach you if needed. Volunteers may bring children to the outside play areas. If you do not want them to be taken out of the childcare rooms to the outside play areas, please let us know. You may also want to apply sunscreen prior to dropoff. Note: Care providers are not able to assist in cathing, diapering, feeding, or naps. The room will be supervised by certified CHLA employees and is located just steps away from the main conference area, so parents will be in close proximity to their children at all times.
- My company is interested in sponsoring the conference. How do I learn more about sponsorship opportunities?
Please visit the sponsor page of our website to learn more about sponsorship levels and details. For more specific questions, please contact Executive Director, Pamela Artigas .
- How do I book a hotel?
Rooms have been reserved at The Hollywood Hotel Use code: CHLA Bladder Group 1 Queen Bed - $199.00 plus 15.5% Occupancy Tax and $ 2.00 Daily Assessment Tax 2 Queen Beds - $219.00 plus 15.5% Occupancy Tax and $ 2.00 Daily Assessment Tax *Additional Guests - $40.00 per extra person (Children under 17 are free) Reservations at these rates must be made by May 28, 2019. Reservations after May 28, 2019 will be based on a first come, first served basis and established rates will apply. Call or email Mandy | 310-701-8828 or Cecile | 323-315-1832 at the hotel to make a reservation.
- What is the weather like in Los Angeles?
It’s hard to dream up more perfect weather than a typical day in Los Angeles in June. The days are warm with barely any rain and lots of sunshine hours. The average daily high temperature is about 75°F (24°C) and only gets as low as about 55°F (13°C). The chance of rain on any given day is only two percent and the chance of a cloudy day is 18 percent, so it is a fairly safe bet that you won't need to bring an umbrella or raincoat. Los Angeles has a local weather phenomenon called 'June Gloom' where areas near to the coast are cloudy and foggy at the start of the day. However, this does clear up by early afternoon. So if you’re wondering what to wear, t-shirts and shorts would be fine for during the day, with light sweater or jacket for the evening. And remember to pack sunscreen! *The average sea temperature averages around 63°F (17°C) in June, so you could definitely enjoy a dip in the Pacific Ocean to cool off from the warm sunshine.