When a child in the US is born with bladder exstrophy, it can be both shocking and devastating. With ultrasound…
Read MoreBladder exstrophy in Uganda: Undying hope and a long journey for treatment

Ibriham was born with bladder exstrophy in northern Uganda. The condition was unfamiliar to local health workers. Though there was…
Read MoreBladder exstrophy in Uganda: My story begins with Solomon

My story with exstrophy begins in a small country located in eastern Africa called Uganda. Uganda is commonly referred to as…
Read MoreLiving with bladder exstrophy in Uganda: Johnson’s story continues

The quality of life for Ugandan bladder exstrophy patient Johnson (Ndyabagye) continues to improve since receiving his first surgery more…
Read MoreLiving with bladder exstrophy in Uganda: Rachel’s story

A team from A-BE-C, including Executive Director Pamela Block and Board Member Janet Gibson visited several bladder exstrophy patients living…
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