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Outcomes Survey
Blog
Find a Center of Excellence
Adult Provider Directory
Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • 2026 Annual Conference
  • RESOURCES & EDUCATION
    • Adult Provider Directory
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research & Articles
    • Support
    • Videos
    • Webinars
    • SHOP
  • OUR IMPACT
    • Our Why
    • BE Dry
    • India
    • Uganda
    • What’s Next?
  • ABOUT US
    • Leadership
    • Medical Advisory Council
    • Adult Patient Advisory Council
    • Contact
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Fundraise for A-BE-C
    • Physician Registration for 2026 India Workshop

The 11th Annual Workshop in Ahmedabad, India Was a Resounding Success

by Angie Kujath
Posted on May 23, 2019
in
Global Care, News

The 11th annual workshop in Ahmedabad, India Was a resounding success thanks to a dedicated international collaboration of medical experts.…

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The treatable condition of bladder exstrophy can still be a death sentence in Uganda

by Katie Baker
Posted on November 12, 2018
in
Global Care, News, Uganda

When a child in the US is born with bladder exstrophy, it can be both shocking and devastating. With ultrasound…

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Bladder exstrophy in Uganda: Undying hope and a long journey for treatment

by Katie Baker
Posted on November 5, 2018
in
Global Care, News, Uganda

Ibriham was born with bladder exstrophy in northern Uganda. The condition was unfamiliar to local health workers. Though there was…

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Bladder exstrophy in Uganda: My story begins with Solomon

by Katie Baker
Posted on October 31, 2018
in
Global Care, News, Uganda

My story with exstrophy begins in a small country located in eastern Africa called Uganda. Uganda is commonly referred to as…

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Living with bladder exstrophy in Uganda: Johnson’s story continues

by Katie Baker
Posted on October 23, 2018
in
Global Care, News, Uganda, Uncategorized

The quality of life for Ugandan bladder exstrophy patient Johnson (Ndyabagye) continues to improve since receiving his first surgery more…

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Association for the Bladder Exstrophy Community

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