Get in Touch: 
  • Email Us
  • A-BE-C Blog
  • Find a Center of Excellence
Association for the Bladder Exstrophy Community
  • Canvas
    • WHAT IS BLADDER EXSTROPHY?
      • I’m New Here
      • Causes & Diagnosis
    • RESOURCES & EDUCATION
      • 2022 Annual Conference
      • Bathroom Toolkit
      • Bladder Exstrophy App
      • Catheter Information
      • Centers of Excellence
      • FAQs
      • Research
      • Support
      • Videos
      • Webinars
    • OUR IMPACT
      • Our Why
      • Armenia Medical Mission
      • India
      • Uganda
      • BE Dry
      • What’s Next?
    • ABOUT US
      • Leadership
      • Advisory Council
      • Our Story
      • Contact
    • GIVE
      • Give Now
      • Donate Monthly
      • Employer Match
      • Activate AmazonSmile
      • Fundraise for A-BE-C
      • Physician Registration for India Workshop
Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
A-BE-C Blog
Find a Center of Excellence
Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2022 Annual Conference
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research
    • Support
    • Videos
    • Webinars
  • OUR IMPACT
    • Our Why
    • Armenia Medical Mission
    • India
    • Uganda
    • BE Dry
    • What’s Next?
  • ABOUT US
    • Leadership
    • Advisory Council
    • Our Story
    • Contact
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Activate AmazonSmile
    • Fundraise for A-BE-C
    • Physician Registration for India Workshop

The treatable condition of bladder exstrophy can still be a death sentence in Uganda

by Katie Baker
Posted on November 12, 2018
in
Global Care, News, Uganda

When a child in the US is born with bladder exstrophy, it can be both shocking and devastating. With ultrasound…

Read More

Bladder exstrophy in Uganda: Undying hope and a long journey for treatment

by Katie Baker
Posted on November 5, 2018
in
Global Care, News, Uganda

Ibriham was born with bladder exstrophy in northern Uganda. The condition was unfamiliar to local health workers. Though there was…

Read More

Bladder exstrophy in Uganda: My story begins with Solomon

by Katie Baker
Posted on October 31, 2018
in
Global Care, News, Uganda

My story with exstrophy begins in a small country located in eastern Africa called Uganda. Uganda is commonly referred to as…

Read More

Living with bladder exstrophy in Uganda: Johnson’s story continues

by Katie Baker
Posted on October 23, 2018
in
Global Care, News, Uganda, Uncategorized

The quality of life for Ugandan bladder exstrophy patient Johnson (Ndyabagye) continues to improve since receiving his first surgery more…

Read More

Living with bladder exstrophy in Uganda: Rachel’s story

Rachel and Pamela Block
by Katie Baker
Posted on October 18, 2018
in
Global Care, News, Uganda

A team from A-BE-C, including Executive Director Pamela Block and Board Member Janet Gibson visited several bladder exstrophy patients living…

Read More
Newer
123…5
Older

Association for the Bladder Exstrophy Community

505 Beachland Blvd. Ste: 1-#180
Vero Beach, FL 32963

Email: [email protected]

TaxID: 68-0252009

Sign up for our newsletter to receive updates, new webinars and more!

SUBSCRIBE NOW
Copyright ©2022 Association for the Bladder Exstrophy Community. All Rights Reserved

About        News      Privacy Policy      Terms of Use