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Outcomes Survey
Blog
Find a Center of Excellence
Adult Provider Directory
Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • 2026 Annual Conference
  • RESOURCES & EDUCATION
    • Adult Provider Directory
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research & Articles
    • Support
    • Videos
    • Webinars
    • SHOP
  • OUR IMPACT
    • Our Why
    • BE Dry
    • India
    • Uganda
    • What’s Next?
  • ABOUT US
    • Leadership
    • Medical Advisory Council
    • Adult Patient Advisory Council
    • Contact
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Fundraise for A-BE-C
    • Physician Registration for 2027 India Workshop

Living with bladder exstrophy in Uganda: Rachel’s story

Rachel and Pamela Block
by Katie Baker
Posted on October 18, 2018
in
Global Care, News, Uganda

A team from A-BE-C, including Executive Director Pamela Block and Board Member Janet Gibson visited several bladder exstrophy patients living…

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Good News From Uganda!

by Katie Baker
Posted on April 25, 2018
in
Global Care, Homepage, News

With every bladder exstrophy patient there is a story of resilience and hope.  A new chapter of young Ugandan Ndyabagye…

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Four exceptional physicians receive inaugural ‘Richard W. Grady Humanitarian Award’

by Katie Baker
Posted on March 15, 2018
in
Global Care, Homepage, News, Uncategorized

Those who knew the late Dr. Richard W. Grady understand his unwavering commitment to children and families affected by bladder…

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The future of bladder exstrophy care in China

by Katie Baker
Posted on July 25, 2017
in
Global Care, Homepage, News

Laparoscopic pediatric urologist Dr. Zhou Huixia (周辉霞) highlights gaps in bladder exstrophy care that exist across China, and her plans…

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A chance encounter leads to groundbreaking bladder exstrophy research

by Katie Baker
Posted on July 18, 2017
in
Global Care, Homepage, News, Research, Research on Bladder Exstrophy

Professor Wei Cheng recalls the path that led to the discovery of the gene and mechanism responsible for bladder exstrophy…

Read More
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Association for the Bladder Exstrophy Community

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