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A-BE-C Blog
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Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2023 Annual Conference
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research
    • Support
    • Videos
    • Webinars
  • OUR IMPACT
    • Our Why
    • Armenia Medical Mission
    • India
    • Uganda
    • BE Dry
    • What’s Next?
  • ABOUT US
    • Leadership
    • Advisory Council
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    • Contact
  • SHOP
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Fundraise for A-BE-C
    • Physician Registration for India Workshop

ARTICLE: Patient-reported outcomes in adult females with bladder exstrophy

ABEC | Seattle Children's Study
by Angie Kujath
Posted on June 22, 2020
in
News, Research

An article based on a survey conducted in 2019 by Seattle Children’s and A-BE-C regarding adult females with exstrophy and their long-term sexual, reproductive, and urinary outcomes has been published.

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Study to be Presented at Societies for Pediatric Urology Fall Meeting

by Angie Kujath
Posted on August 29, 2019
in
News, Research

          You may remember a survey conducted earlier this year by Seattle Children’s and A-BE-C regarding…

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Poster Presentation: The Uganda Exstrophy-Epispadias Complex Initiative

by Angie Kujath
Posted on April 1, 2019
in
News, Research

Developing a Program for Transference of Complex Surgical Reconstructive Skills

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Seattle Children’s and A-BE-C publish results of study surveying adult men with bladder exstrophy

ABEC | Seattle Children's Study
by Katie Baker
Posted on October 23, 2018
in
News, Research

Researchers at Seattle Children’s Hospital in collaboration with Association for the Bladder Exstrophy Community (A-BE-C) recently published results of a…

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A chance encounter leads to groundbreaking bladder exstrophy research

by Katie Baker
Posted on July 18, 2017
in
Global Care, Homepage, News, Research, Research on Bladder Exstrophy

Professor Wei Cheng recalls the path that led to the discovery of the gene and mechanism responsible for bladder exstrophy…

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Association for the Bladder Exstrophy Community

505 Beachland Blvd. Ste: 1-#180
Vero Beach, FL 32963

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