CompactCath offering free samples of new discrete catheter

For many bladder exstrophy patients, catheters are a source of frustration or embarrassment. The new CompactCath was created to replace the large, clunky design ... more

8 Healthy Cathing Habits

Catheritization or "cathing" is a fact of life for many bladder exstrophy patients. These eight healthy cathing habits help patients reduce the risk of urinary ... more

Kidney safe medications

Kidney health is especially important to bladder exstrophy patients and many commonly used pain relievers, medications and supplements can have harmful effects. ... more

Major League Baseball & Bladder Exstrophy

MLB agent Joshua Kusnick courageously shares his journey living with bladder exstrophy in a profile by former Sports Illustrated reporter Joe Lemire in The Cauldr... more

How much medical care is involved?

Treatment for exstrophy of the bladder begins at birth. The most important goals in the care of a boy or girl with bladder exstrophy are to:preserve normal ... more

Webinar recording - Overview of Bladder Exstrophy

Dr. William Reiner, professor of Pediatric Urology at the University of Oklahoma's Department of Urology provides an excellent overview of bladder exstropy in this ... more