Get in Touch: 
  • Email Us
  • A-BE-C Blog
  • Find a Center of Excellence
Association for the Bladder Exstrophy Community
  • Canvas
    • WHAT IS BLADDER EXSTROPHY?
      • I’m New Here
      • Causes & Diagnosis
    • RESOURCES & EDUCATION
      • 2025 Annual Conference
      • Bathroom Toolkit
      • Bladder Exstrophy App
      • Catheter Information
      • Centers of Excellence
      • FAQs
      • Research & Articles
      • Support
      • Videos
      • Webinars
    • OUR IMPACT
      • Our Why
      • BE Dry
      • India
      • Uganda
      • What’s Next?
    • ABOUT US
      • Leadership
      • Medical Advisory Council
      • Adult Patient Advisory Council
      • Our Story
      • Contact
    • SHOP
    • GIVE
      • Give Now
      • Donate Monthly
      • Employer Match
      • Fundraise for A-BE-C
      • Physician Registration for 2025 India Workshop
Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
A-BE-C Blog
Find a Center of Excellence
Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2025 Annual Conference
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research & Articles
    • Support
    • Videos
    • Webinars
  • OUR IMPACT
    • Our Why
    • BE Dry
    • India
    • Uganda
    • What’s Next?
  • ABOUT US
    • Leadership
    • Medical Advisory Council
    • Adult Patient Advisory Council
    • Our Story
    • Contact
  • SHOP
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Fundraise for A-BE-C
    • Physician Registration for 2025 India Workshop
By Angie Kujath
May 23, 2019
1 Comments

The 11th Annual Workshop in Ahmedabad, India Was a Resounding Success

The 11th annual workshop in Ahmedabad, India Was a resounding success thanks to a dedicated international collaboration of medical experts. For the 5th year, A-BE-C was among the visiting team of 27 pediatric surgeons, nephrologists, anesthesiologists, nurses, social workers, and researchers united in the shared passion for the treating the humbling condition of bladder exstrophy.

A-BE-C plays crucial role in workshop

“Pamela Artigas, the executive director of A-BE-C, is now a multi-year attendee of the workshop and an integral part of what makes our effort successful. As the mother of a child with exstrophy, Pamela intimately knows the daily challenges–joys and sorrows–of this terrible condition, and brings that same empathy, love and compassion to her adopted 100+ children in Ahmedabad! Pamela wears her heart on her sleeves, and we all are witness to the boundless devotion she has in her mission to lighten the burden of this condition on families. A-BE-C has sponsored the travel of multiple surgeons–often with patients–from Uganda and elsewhere to travel to Ahmedabad, and because of these efforts, an initial attempt is being made to replicate the Ahmedabad model in Kampala. We wish that endeavor the very best.” – Dr. Aseem Shukla, past A-BE-C Advisory Board Chair

Pamela Artigas with former patients treated at the workshop

A few more highlights of A-BE-C’s role in the workshop: 

  • Provided one-on-one counseling & emotional support to families
  • Conducted focus group for underwear project so kids can go to school
  • Provided educational sessions to families on the importance of kidney health
  • Translated educational material to be shared with staff and families
  • Launched a private India Facebook page
  • Provided a magic show in the ward to break up monotony
  • Created a camp experience in the ward with educational games, arts and crafts
  • Donated toys and pajamas

Families listening to educational sessions on the importance of kidney health

 

Children and parents enjoying a magic show

 

Dr. Pramod Reddy, Cincinnati Children’s                                    Dr. Bruno Leslie and Dr. Pippi Salle

 

Dr. Moses from Kampala, Uganda receives a warm welcome.               Dr. Courtney Rowe uses white t-shirts to teach bladder & kidney health

Support our Global Care Initiative

Click here to learn how you can support our Global Care Initiative, or donate today!

Tags: Ahmedabad bladder exstrophy Bladder Exstrophy Support Team dr pramod reddy Dr. Bruno Leslie Dr. Courtney Rowe Dr. Pippi Salle Global care initiative India international exstrophy workshop
A-BE-C | Dr. Paul Merguerian
A-BE-C Elects Dr. Paul Merguerian as Advisory Board Chair
22 May, 2019
That’s a Wrap! CHLA Creates a Memorable Experience at 2019 International Exstrophy Conference
02 Aug, 2019
CHLA, bladder exstrophy, Bladder exstrophy conference

Related Articles

ABEC adult patient advisory council in washington, DC

Raising Our Voices in Washington: A-BE-C at the AUA Advocacy Summit

India | Bladder Exstrophy | IBEC

Uniting the World's Brightest Minds: The 2025 IBEC Conference at CIVIL Hospital

Global Care Uganda | Association for the Bladder Exstrophy Community

Mission Accomplished in Uganda

Recent Posts

  • Raising Our Voices in Washington: A-BE-C at the AUA Advocacy Summit 24 Apr, 2025
  • Uniting the World’s Brightest Minds: The 2025 IBEC Conference at CIVIL Hospital 25 Feb, 2025
  • Mission Accomplished in Uganda 19 Nov, 2024
  • Now Available: 2024 International Exstrophy Conference Videos 28 Oct, 2024
  • Dr. Joao Luiz Pippi Salle Receives 2024 Humanitarian Award 13 Sep, 2024

Social

Association for the Bladder Exstrophy Community

505 Beachland Blvd. Ste: 1-#180
Vero Beach, FL 32963

Email: [email protected]

TaxID: 68-0252009

Sign up for our newsletter to receive updates, new webinars and more!

SUBSCRIBE NOW
Copyright ©2025 Association for the Bladder Exstrophy Community. All Rights Reserved

About        News      Privacy Policy      Terms of Use