Catheritization or “cathing” is a fact of life for many bladder exstrophy patients. The topic triggers many questions and concerns…
Read MoreTimes of India features story of cross cultural support from young patient
“…a five-year-old abandoned Ugandan girl, born with her bladder outside her body, will undergo surgery with the help of funds…
Read MoreIn the News – Young Patient Raising Money for Young Girl in Uganda
[lead]You can help bladder exstrophy patient Mick Hullinger fund surgeries for other children around the world with bladder exstrophy by making…
Read MoreMLB agent Joshua Kusnick courageously shares his journey living with bladder exstrophy in a profile by former Sports Illustrated reporter…
Read MoreGroundbreaking International Operative Workshop
A groundbreaking intensive workshop in the treatment of bladder exstrophy-epispadias complex for pediatric urologists and surgeons is taking place in Ahmedabad, Gujarat, India on January 16-18. Many of A-BE-C’s Medical Advisory Board members will be on-site faculty and A-BE-C’s Executive Director, Pamela Block, will be on hand providing support to families.
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