When seventeen-month-old Annette was first born with bladder exstrophy, her mother assumed her condition was fatal. “I did not understand…
Read MoreCompactCath offering free samples of new discrete catheter
For many bladder exstrophy patients, catheters are a source of frustration or embarrassment. The new CompactCath was created to replace the large, clunky design…
Read MoreBE Informed about Catheters launches with Assessment and 8 Healthy Habits
Catheritization or “cathing” is a fact of life for many bladder exstrophy patients. The topic triggers many questions and concerns…
Read MoreTimes of India features story of cross cultural support from young patient
“…a five-year-old abandoned Ugandan girl, born with her bladder outside her body, will undergo surgery with the help of funds…
Read MoreIn the News – Young Patient Raising Money for Young Girl in Uganda
[lead]You can help bladder exstrophy patient Mick Hullinger fund surgeries for other children around the world with bladder exstrophy by making…
Read More