Can’t make it to the conference? We have you covered! Stream the International Exstrophy Conference LIVE on June 29 & 30 or watch on demand at a later date. All you have to do is register! We are asking for $25 donations to cover the cost of the stream and support the ongoing mission of A-BE-C. Thank you!
Registration for the stream is now closed. Please check back after the conference for information on how to view the sessions on demand.
Sessions include:
Saturday, June 29th
| Time | Topic | Speaker |
| 8:00 – 8:15am | Welcome | Pamela Artigas
Executive Director, A-BE-C Roger De Filippo, MD Chair of the Division of Urology CHLA |
| 8:15 – 8:30am | Agenda and Conference Theme
“Coping with Exstrophy” |
Evalynn Vasquez, MD, MBA,
Zorash Montano, PhD, |
| 8:30 – 9:15am | Coping with Exstrophy | Emily Haddad, LCSW
Zorash Montano, PhD |
| 9:15 – 10:00am | Life with Exstrophy | April Gimlen and
Ana Gimlen LaFond |
| 11:45 –1:15pm | Lunch and Courage to Shine Presentation
Lunch sponsored by Leo Chu |
2019 Courage to Shine Winner
TBA |
| PARENT/ADULT TRACK | ||
| 1:30 – 2:30pm | Transitioning to Adult Care | Dan Wood, PhD, FRCS Urol. |
| 2:30 – 3:15pm | Navigating the School System | Octavio (Tavo) Zavala
Paige Sable, LCSW |
| 3:15 – 4:00pm | Disclosure | Barbara Nielson, MSW |
| 4:00 – 4:15pm | Importance of Clinical Research | Anthony Schaeffer, MD, MPH |
| 4:15 – 5:00pm | Open Forum | Pamela Artigas |
Sunday, June 30, 2019
| Time | Activity |
| 8:15 – 9:15 am | Coping with Pain
|
| 9:15 – 10:15am | Talent show featuring special musical guest |
| 10:15 – 10:45 am | Wellness Fair Introductions |