Can’t make it to the conference? We have you covered! Stream the International Exstrophy Conference LIVE on June 29 & 30 or watch on demand at a later date. All you have to do is register! We are asking for $25 donations to cover the cost of the stream and support the ongoing mission of A-BE-C. Thank you!

Registration for the stream is now closed. Please check back after the conference for information on how to view the sessions on demand.


Sessions include:

Saturday, June 29th

8:00 – 8:15amWelcomePamela Artigas

Executive Director, A-BE-C

Roger De Filippo, MD

Chair of the Division of Urology CHLA

8:15 – 8:30amAgenda and Conference Theme

“Coping with Exstrophy”

Evalynn Vasquez, MD, MBA,

Zorash Montano, PhD,

8:30 – 9:15amCoping with ExstrophyEmily Haddad, LCSW

Zorash Montano, PhD

9:15 – 10:00amLife with ExstrophyApril Gimlen and

Ana Gimlen LaFond

11:45 –1:15pmLunch and Courage to Shine Presentation

Lunch sponsored by Leo Chu

2019 Courage to Shine Winner


1:30 – 2:30pmTransitioning to Adult CareDan Wood, PhD, FRCS Urol.
2:30 – 3:15pmNavigating the School SystemOctavio (Tavo) Zavala

Paige Sable, LCSW

3:15 – 4:00pmDisclosureBarbara Nielson, MSW
4:00 – 4:15pmImportance of Clinical ResearchAnthony Schaeffer, MD, MPH
4:15 – 5:00pmOpen ForumPamela Artigas


Sunday, June 30, 2019

8:15 – 9:15 amCoping with Pain

  • Pain Psychologists
    • Alyson Herme, PhD
    • Alvina Rosales, PhD
  • Rubi Buxton, Pelvic Floor Physical Therapists
9:15 – 10:15amTalent show featuring special musical guest
10:15 – 10:45 amWellness Fair Introductions