Get in Touch: 
  • Email Us
  • A-BE-C Blog
  • Find a Center of Excellence
Association for the Bladder Exstrophy Community
  • Canvas
    • WHAT IS BLADDER EXSTROPHY?
      • I’m New Here
      • Causes & Diagnosis
    • RESOURCES & EDUCATION
      • 2025 Annual Conference
      • Bathroom Toolkit
      • Bladder Exstrophy App
      • Catheter Information
      • Centers of Excellence
      • FAQs
      • Research & Articles
      • Support
      • Videos
      • Webinars
    • OUR IMPACT
      • Our Why
      • BE Dry
      • India
      • Uganda
      • What’s Next?
    • ABOUT US
      • Leadership
      • Medical Advisory Council
      • Adult Patient Advisory Council
      • Our Story
      • Contact
    • SHOP
    • GIVE
      • Give Now
      • Donate Monthly
      • Employer Match
      • Fundraise for A-BE-C
      • Physician Registration for 2025 India Workshop
Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
A-BE-C Blog
Find a Center of Excellence
Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2025 Annual Conference
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research & Articles
    • Support
    • Videos
    • Webinars
  • OUR IMPACT
    • Our Why
    • BE Dry
    • India
    • Uganda
    • What’s Next?
  • ABOUT US
    • Leadership
    • Medical Advisory Council
    • Adult Patient Advisory Council
    • Our Story
    • Contact
  • SHOP
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Fundraise for A-BE-C
    • Physician Registration for 2025 India Workshop
By Angie Kujath
December 3, 2019
0 Comments

Johnson’s Story

Sadly, the beginning of Johnson’s story is one of many – there are hundreds of children just like him that are feeling hopeless and helpless. Who are suffering without access to care and treatment. And for every child like Johnson, there are parents feeling the anguish of not being able to properly care for their child.

But Johnson also represents what can happen when a child is given proper care. He can live a life without pain. Without fear. And instead he will have hope, go to school, live a life free of suffering and shame.

This should be the standard. This should be available to EVERYONE with bladder exstrophy.

This isn’t the end of Johnson’s story. He has inspired a movement. With your donations, A-BE-C has been making an impact around the world to make Johnson’s outcome a reality for every child born with bladder exstrophy. So that no parent has to feel hopeless or helpless. Our goal is to facilitate life changing surgeries that allow children to go to school, have access to supplies and resources, and help their families navigate the complexities of this lifelong condition. Each of us deserves to live our life to its greatest purpose and potential.

How will you help us make an impact? You can start by sharing Johnson’s story. And if you are able, consider a donation to our Global Care Initiative.

Help kids like Johnson
Tags: bladder exstrophy Global care initiative Johnson uganda
A Father’s Plea Leads To Worldwide Support
16 Nov, 2019
2019 Conference Videos Now Available!
20 Feb, 2020

Related Articles

ABEC adult patient advisory council in washington, DC

Raising Our Voices in Washington: A-BE-C at the AUA Advocacy Summit

India | Bladder Exstrophy | IBEC

Uniting the World's Brightest Minds: The 2025 IBEC Conference at CIVIL Hospital

Global Care Uganda | Association for the Bladder Exstrophy Community

Mission Accomplished in Uganda

Recent Posts

  • Raising Our Voices in Washington: A-BE-C at the AUA Advocacy Summit 24 Apr, 2025
  • Uniting the World’s Brightest Minds: The 2025 IBEC Conference at CIVIL Hospital 25 Feb, 2025
  • Mission Accomplished in Uganda 19 Nov, 2024
  • Now Available: 2024 International Exstrophy Conference Videos 28 Oct, 2024
  • Dr. Joao Luiz Pippi Salle Receives 2024 Humanitarian Award 13 Sep, 2024

Social

Association for the Bladder Exstrophy Community

505 Beachland Blvd. Ste: 1-#180
Vero Beach, FL 32963

Email: [email protected]

TaxID: 68-0252009

Sign up for our newsletter to receive updates, new webinars and more!

SUBSCRIBE NOW
Copyright ©2025 Association for the Bladder Exstrophy Community. All Rights Reserved

About        News      Privacy Policy      Terms of Use