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  • WHAT IS BLADDER EXSTROPHY?
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    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2025 Annual Conference
    • Bathroom Toolkit
    • Bladder Exstrophy App
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Homepage, Living with Bladder Exstrophy, Video

2019 Conference Videos Now Available!

February 20, 2020
By Angie Kujath
4 Comments
2621 Views

The 2019 International Exstrophy Conference was hosted by Children’s Hospital Los Angeles (CHLA), and sessions focused on the various ways coping plays a role in living with exstrophy.

CHLA graciously recorded the sessions so we could make them available to our A-BE-C community.

Welcome

Presented by Pamela Artigas, Executive Director of A-BE-C

Intro & Overview

Presented by Evalynn Vasquez, MD

Life With Exstrophy

Presented by April Gimlen & Ana Gimlen LaFond

Transitioning to Adult Care

Presented by Dan Wood, Phd

Navigating the School System

Presented by Tavo Zavala & Paige Sable, LCSW

Disclosure of Exstrophy

Presented by Barbara Neilson, MSW

Importance of  Research

Presented by Anthony Schaeffer, MD

Coping With Pain

Presented by Alyson Herme, PhD, Alvina Rosales, PhD & Rubi Buxto

Courage to Shine Winner

Briten Douglas

“Chance to Lose it All”

Performance by Adam Bruno

Tags: abec Adam Bruno alvina rosales alyson herme ana gimlen lafond anthony schaeffer april gimle barbara neilson bladder exstrophy bladder exstrophy conference briten douglas Children's Hospital Los Angeles CHLA coping with exstrophy coping with pain dan wood disclosure of exstrophy evalynn vasquez importance of research lcsw life with exstrophy md navigating the school systme paige sable Pamela Artigas phd rubi buxto tavo zavala transitioning to adult care video

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