The 2019 International Exstrophy Conference was hosted by Children’s Hospital Los Angeles (CHLA), and sessions focused on the various ways coping plays a role in living with exstrophy.

CHLA graciously recorded the sessions so we could make them available to our A-BE-C community.

Welcome

Presented by Pamela Artigas, Executive Director of A-BE-C

Intro & Overview

Presented by Evalynn Vasquez, MD

Life With Exstrophy

Presented by April Gimlen & Ana Gimlen LaFond

Transitioning to Adult Care

Presented by Dan Wood, Phd

Navigating the School System

Presented by Tavo Zavala & Paige Sable, LCSW

Disclosure of Exstrophy

Presented by Barbara Neilson, MSW

Importance of  Research

Presented by Anthony Schaeffer, MD

Coping With Pain

Presented by Alyson Herme, PhD, Alvina Rosales, PhD & Rubi Buxto

Courage to Shine Winner

Briten Douglas

“Chance to Lose it All”

Performance by Adam Bruno