2019 Conference Videos Now Available!
The 2019 International Exstrophy Conference was hosted by Children’s Hospital Los Angeles (CHLA), and sessions focused on the various ways coping plays a role in living with exstrophy.
CHLA graciously recorded the sessions so we could make them available to our A-BE-C community.
Welcome
Presented by Pamela Artigas, Executive Director of A-BE-C
Intro & Overview
Presented by Evalynn Vasquez, MD
Life With Exstrophy
Presented by April Gimlen & Ana Gimlen LaFond
Transitioning to Adult Care
Presented by Dan Wood, Phd
Navigating the School System
Presented by Tavo Zavala & Paige Sable, LCSW
Disclosure of Exstrophy
Presented by Barbara Neilson, MSW
Importance of Research
Presented by Anthony Schaeffer, MD
Coping With Pain
Presented by Alyson Herme, PhD, Alvina Rosales, PhD & Rubi Buxto
Tags: abec Adam Bruno alvina rosales alyson herme ana gimlen lafond anthony schaeffer april gimle barbara neilson bladder exstrophy bladder exstrophy conference briten douglas Children's Hospital Los Angeles CHLA coping with exstrophy coping with pain dan wood disclosure of exstrophy evalynn vasquez importance of research lcsw life with exstrophy md navigating the school systme paige sable Pamela Artigas phd rubi buxto tavo zavala transitioning to adult care video
