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Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2025 Annual Conference
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research & Articles
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    • Webinars
  • OUR IMPACT
    • Our Why
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    • What’s Next?
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    • Physician Registration for 2025 India Workshop
Uncategorized

Another Chapter in Johnson’s Story

March 7, 2022
By Angie Kujath
0
2575
Read More

Johnson’s Story

by Angie Kujath
Posted on December 3, 2019
in
Uganda, Video
Sadly, the beginning of Johnson’s story is one of many – there are hundreds of children just like him that… Read More

Living with bladder exstrophy in Uganda: Johnson’s story continues

by Katie Baker
Posted on October 23, 2018
in
Global Care, News, Uganda, Uncategorized

The quality of life for Ugandan bladder exstrophy patient Johnson (Ndyabagye) continues to improve since receiving his first surgery more…

Read More

Seven-year-old Johnson finally gets a chance at healing

by Katie Baker
Posted on November 28, 2016
in
Global Care, News

At seven, Johnson (Ndyabagye) is old enough to understand that his body is different from those of his two brothers.…

Read More

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