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A-BE-C Blog
Find a Center of Excellence
Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2022 Annual Conference
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research
    • Support
    • Videos
    • Webinars
  • OUR IMPACT
    • Our Why
    • India
    • Uganda
    • Armenia Medical Mission
    • BE Dry
    • What’s Next?
  • ABOUT US
    • Leadership
    • Advisory Council
    • Our Story
    • Contact
  • STORE
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Activate AmazonSmile
    • Fundraise for A-BE-C

A Life of Lonliness: Mainouna’s Story

Armenia Medical Mission | A-BE-C | bladder exstrophy
by Angie Kujath
Posted on May 24, 2022
in
Uncategorized

“Imagine the feeling of sleeping on a wet bed every night and to wake up very early to clean it and put it on the roof to dry before people wake up.” 

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Missing a Piece of the Puzzle: Khadidja’s Story

Armenia Medical Mission | A-BE-C | bladder exstrophy
by Angie Kujath
Posted on April 8, 2022
in
Uncategorized

Khadidja’s childhood memories are mostly of struggle. She often leaked urine and kids her age always made fun of her. They criticized her for how she walked, and how her thighs never looked as “normal” as theirs.

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