Get in Touch: 
  • Email Us
  • A-BE-C Blog
  • Find a Center of Excellence
Association for the Bladder Exstrophy Community
  • Canvas
    • WHAT IS BLADDER EXSTROPHY?
      • I’m New Here
      • Causes & Diagnosis
    • RESOURCES & EDUCATION
      • 2022 Annual Conference
      • Bathroom Toolkit
      • Bladder Exstrophy App
      • Catheter Information
      • Centers of Excellence
      • FAQs
      • Research
      • Support
      • Videos
      • Webinars
    • OUR IMPACT
      • Our Why
      • Armenia Medical Mission
      • India
      • Uganda
      • BE Dry
      • What’s Next?
    • ABOUT US
      • Leadership
      • Advisory Council
      • Our Story
      • Contact
    • GIVE
      • Give Now
      • Donate Monthly
      • Employer Match
      • Activate AmazonSmile
      • Fundraise for A-BE-C
      • Physician Registration for India Workshop
Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
A-BE-C Blog
Find a Center of Excellence
Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2022 Annual Conference
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research
    • Support
    • Videos
    • Webinars
  • OUR IMPACT
    • Our Why
    • Armenia Medical Mission
    • India
    • Uganda
    • BE Dry
    • What’s Next?
  • ABOUT US
    • Leadership
    • Advisory Council
    • Our Story
    • Contact
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Activate AmazonSmile
    • Fundraise for A-BE-C
    • Physician Registration for India Workshop

Living with bladder exstrophy in Uganda: Johnson’s story continues

by Katie Baker
Posted on October 23, 2018
in
Global Care, News, Uganda, Uncategorized

The quality of life for Ugandan bladder exstrophy patient Johnson (Ndyabagye) continues to improve since receiving his first surgery more…

Read More

Living with bladder exstrophy in Uganda: Rachel’s story

Rachel and Pamela Block
by Katie Baker
Posted on October 18, 2018
in
Global Care, News, Uganda

A team from A-BE-C, including Executive Director Pamela Block and Board Member Janet Gibson visited several bladder exstrophy patients living…

Read More

Good News From Uganda!

by Katie Baker
Posted on April 25, 2018
in
Global Care, Homepage, News

With every bladder exstrophy patient there is a story of resilience and hope.  A new chapter of young Ugandan Ndyabagye…

Read More

Seven-year-old Johnson finally gets a chance at healing

by Katie Baker
Posted on November 28, 2016
in
Global Care, News

At seven, Johnson (Ndyabagye) is old enough to understand that his body is different from those of his two brothers.…

Read More

In the News – Young Patient Raising Money for Young Girl in Uganda

by Katie Baker
Posted on July 30, 2015
in
Fundraiser, Global Care, News

[lead]You can help bladder exstrophy patient Mick Hullinger fund surgeries for other children around the world with bladder exstrophy by making…

Read More
Newer
123
Older

Association for the Bladder Exstrophy Community

505 Beachland Blvd. Ste: 1-#180
Vero Beach, FL 32963

Email: [email protected]

TaxID: 68-0252009

Sign up for our newsletter to receive updates, new webinars and more!

SUBSCRIBE NOW
Copyright ©2022 Association for the Bladder Exstrophy Community. All Rights Reserved

About        News      Privacy Policy      Terms of Use