Building Community: Empowering Families Around the World
We are committed to creating a self-sustaining bladder exstrophy community in Sub-Saharan Africa. On our upcoming Family Education Day, over 50 families from Uganda, South Sudan, and Burundi will come together with our Global Care team for a day focused on education, empowerment, and connection.
Families Around the World Need Your Help.
The Power of Community
Caring for exstrophy alone can feel overwhelming, even isolating, but we are here to change that. Our goal is to build a supportive network where families no longer feel alone but instead are strengthened by a community that understands their journey.
Education and Advocacy
Families attending the Uganda Family Day will receive education on exstrophy, self-advocacy, and how to nurture independence for themselves and their loved ones. Knowledge is key in overcoming challenges, and we aim to equip every participant with the tools they need.
Family Stories
Local families will share their experiences, offering encouragement and inspiration. These shared stories will help empower families to face the future with confidence and hope.
Art and Music Therapy
Creative therapy will be offered to build strong bonds and a sense of belonging among patients and their families. Music and art not only provide healing but also foster community connections that last.
How You Can Help
We need your help to make this day a success. Your donation will provide:
- Transportation for families to attend the event.
- Access to Healthcare with international expert pediatric urologists, orthopedic surgeons, and nurses available to see all patients in the clinic.
- Nutritious Meals to ensure that every participant enjoys a healthy breakfast and lunch.
- Art Supplies for art therapy, enabling creative expression and therapeutic healing.
How Much?
Each family needs $250 to attend this life-changing day, and with over 50 families expected to join, we aim to raise $12,500. Every contribution, no matter how small, will help us move closer to building a thriving, connected BE community in Sub-Saharan Africa.
Together, we can strengthen this community. Will you help us?
With your support, we can create a lasting impact, empowering families to face BE with confidence and care, and ultimately transforming lives. Let’s build this community—one family at a time.
