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Blog
Find a Center of Excellence
Adult Provider Directory
Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2025 Annual Conference
    • Adult Provider Directory
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research & Articles
    • Support
    • Videos
    • Webinars
  • OUR IMPACT
    • Our Why
    • BE Dry
    • India
    • Uganda
    • What’s Next?
  • ABOUT US
    • Leadership
    • Medical Advisory Council
    • Adult Patient Advisory Council
    • Contact
  • SHOP
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Fundraise for A-BE-C
    • Physician Registration for 2026 India Workshop

2020 Back to School Virtual Conference!

by Angie Kujath
Posted on October 24, 2020
in
Conference, Living with Bladder Exstrophy, Video, Webinar

Check out the video from our virtual back to school conference, where we discussed back to school concerns for BE kids and families, talk about Covid related issues, and provide tips for bathroom procedures.

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El milagro perfecto de Rosina

by Angie Kujath
Posted on July 17, 2020
in
Centers of Excellence, Living with Bladder Exstrophy

Rosina comparte la historia de su hija, Fátima, también conocida como “Mily”, y su viaje con extrofia cloacal en el Children’s Hospital Los Angeles.

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Rosina’s Perfect Miracle

by Angie Kujath
Posted on July 15, 2020
in
Centers of Excellence, Living with Bladder Exstrophy

Rosina shares the story of her daughter, Fatima aka “Mily”, and their journey with cloacal exstrophy at Children’s Hospital Los Angeles.

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Centers of Excellence, Living with Bladder Exstrophy

Family Finds Hope and Support at Seattle Children’s

June 20, 2020
By Angie Kujath
0
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2 Comments
2919 Views
Homepage, Living with Bladder Exstrophy, Video

Re-Released! 2015 International Exstrophy Conference Videos

June 2, 2020
By Angie Kujath
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Newer
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Association for the Bladder Exstrophy Community

505 Beachland Blvd. Ste: 1-#180
Vero Beach, FL 32963

Email: [email protected]

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