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A-BE-C Blog
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Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2022 Annual Conference
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research
    • Support
    • Videos
    • Webinars
  • OUR IMPACT
    • Our Why
    • Armenia Medical Mission
    • India
    • Uganda
    • BE Dry
    • What’s Next?
  • ABOUT US
    • Leadership
    • Advisory Council
    • Our Story
    • Contact
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Activate AmazonSmile
    • Fundraise for A-BE-C
    • Physician Registration for India Workshop

El milagro perfecto de Rosina

by Angie Kujath
Posted on July 17, 2020
in
Centers of Excellence, Living with Bladder Exstrophy

Rosina comparte la historia de su hija, Fátima, también conocida como “Mily”, y su viaje con extrofia cloacal en el Children’s Hospital Los Angeles.

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Rosina’s Perfect Miracle

by Angie Kujath
Posted on July 15, 2020
in
Centers of Excellence, Living with Bladder Exstrophy

Rosina shares the story of her daughter, Fatima aka “Mily”, and their journey with cloacal exstrophy at Children’s Hospital Los Angeles.

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CHOP – Thoughts on COVID-19 Crisis

by Angie Kujath
Posted on July 6, 2020
in
Centers of Excellence

We have been amazed at our ability as humans to pivot as our reality changed.  We have learned about and adapted to this “new normal.” The outpouring of volunteerism that I have seen on our team has been impressive.

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Centers of Excellence, Living with Bladder Exstrophy

Family Finds Hope and Support at Seattle Children’s

June 20, 2020
By Angie Kujath
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Center of Excellence Added to Distinguished List

Center of Excellence, Lurie Children's Hospital, Bladder Exstrophy
by Angie Kujath
Posted on May 13, 2019
in
Centers of Excellence, Homepage, News, Uncategorized

A-BE-C is excited to announce the addition of  Ann & Robert H. Lurie Children’s Hospital of Chicago to its prestigious list…

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Association for the Bladder Exstrophy Community

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Vero Beach, FL 32963

Email: [email protected]

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