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Outcomes Survey
Blog
Find a Center of Excellence
Adult Provider Directory
Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • 2026 Annual Conference
  • RESOURCES & EDUCATION
    • Adult Provider Directory
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research & Articles
    • Support
    • Videos
    • Webinars
    • SHOP
  • OUR IMPACT
    • Our Why
    • BE Dry
    • India
    • Uganda
    • What’s Next?
  • ABOUT US
    • Leadership
    • Medical Advisory Council
    • Adult Patient Advisory Council
    • Contact
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Fundraise for A-BE-C
    • Physician Registration for 2026 India Workshop

Historic Consensus: A New Era for Bladder Exstrophy Care

by Angie Kujath
Posted on May 8, 2026
in
Centers of Excellence

A-BE-C shares groundbreaking survey data from 133 bladder exstrophy families, sparking a historic global collaboration among leading surgeons focused on trust, transparency, and improving outcomes for every child.

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El milagro perfecto de Rosina

by Angie Kujath
Posted on July 17, 2020
in
Centers of Excellence, Living with Bladder Exstrophy

Rosina comparte la historia de su hija, Fátima, también conocida como “Mily”, y su viaje con extrofia cloacal en el Children’s Hospital Los Angeles.

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Rosina’s Perfect Miracle

by Angie Kujath
Posted on July 15, 2020
in
Centers of Excellence, Living with Bladder Exstrophy

Rosina shares the story of her daughter, Fatima aka “Mily”, and their journey with cloacal exstrophy at Children’s Hospital Los Angeles.

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CHOP – Thoughts on COVID-19 Crisis

by Angie Kujath
Posted on July 6, 2020
in
Centers of Excellence

We have been amazed at our ability as humans to pivot as our reality changed.  We have learned about and adapted to this “new normal.” The outpouring of volunteerism that I have seen on our team has been impressive.

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Centers of Excellence, Living with Bladder Exstrophy

Family Finds Hope and Support at Seattle Children’s

June 20, 2020
By Angie Kujath
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Association for the Bladder Exstrophy Community

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Vero Beach, FL 32963

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