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A-BE-C Blog
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Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2022 Annual Conference
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research
    • Support
    • Videos
    • Webinars
  • OUR IMPACT
    • Our Why
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    • India
    • Uganda
    • BE Dry
    • What’s Next?
  • ABOUT US
    • Leadership
    • Advisory Council
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  • GIVE
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    • Donate Monthly
    • Employer Match
    • Activate AmazonSmile
    • Fundraise for A-BE-C
    • Physician Registration for India Workshop

Johns Hopkins seeking participants with bladder exstrophy for clinical trial

by Katie Baker
Posted on February 7, 2017
in
Featured Research Post, News, Research on Bladder Exstrophy, Uncategorized

The pediatric urology team at Johns Hopkins is looking for bladder exstrophy patients to participate in a clinical trial. Participants…

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Families in India learn post-surgical care for bladder exstrophy

by Katie Baker
Posted on January 13, 2017
in
Global Care, News, Uncategorized

Among the nearly 100 children who received checkups and medical procedures for bladder exstrophy at the operative workshop in India in…

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A-BE-C participates in bladder health roundtable

by Katie Baker
Posted on October 13, 2016
in
News, Uncategorized

Executive Director Pamela Block was invited to represent the Association for the Bladder Exstrophy Community at the 2016 Bladder Health…

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Times of India features story of cross cultural support from young patient

by Katie Baker
Posted on January 13, 2016
in
Global Care, News, Uncategorized

“…a five-year-old abandoned Ugandan girl, born with her bladder outside her body, will undergo surgery with the help of funds…

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Association for the Bladder Exstrophy Community

505 Beachland Blvd. Ste: 1-#180
Vero Beach, FL 32963

Email: [email protected]

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