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Outcomes Survey
Blog
Find a Center of Excellence
Adult Provider Directory
Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2026 Annual Conference
    • Adult Provider Directory
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research & Articles
    • Support
    • Videos
    • Webinars
  • OUR IMPACT
    • Our Why
    • BE Dry
    • India
    • Uganda
    • What’s Next?
  • ABOUT US
    • Leadership
    • Medical Advisory Council
    • Adult Patient Advisory Council
    • Contact
  • SHOP
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Fundraise for A-BE-C
    • Physician Registration for 2026 India Workshop

Johnson’s Story

by Angie Kujath
Posted on December 3, 2019
in
Uganda, Video
Sadly, the beginning of Johnson’s story is one of many – there are hundreds of children just like him that… Read More

Animated video especially for children with bladder exstrophy

by Katie Baker
Posted on January 9, 2019
in
Homepage, News, Video

The Boy with the Tiny Belly Button is a wonderful animated film for all children born with bladder exstrophy.

Read More

Premiering now! New documentary on bladder exstrophy in Uganda

by Katie Baker
Posted on November 27, 2018
in
News, Uganda, Video

The Uganda Initiative is launching as part of A-BE-C’s work in global care for bladder exstrophy. See how–together–we’re already making…

Read More
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2219 Views
Video

Kids with Exstrophy Share Their Wisdom

June 2, 2018
By Angie Kujath
Read More
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Association for the Bladder Exstrophy Community

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