A-BE-C recently presented its Richard W. Grady Humanitarian Award to Dr. Joao Luiz Pippi Salle, Professor of Urology, SickKids Hospital and Co-Director of the Center for Pelvic Reconstruction.

We are committed to creating a self-sustaining bladder exstrophy community in Sub-Saharan Africa. On our upcoming Family Education Day, over 50 families from Uganda, South Sudan, and Burundi will come together with our Global Care team for a day focused on education, empowerment, and connection.

Rachel Althizer, 32, received the 2024 Courage to Shine award at the International Conference in Milwaukee, WI.

The A-Be-C Uganda initiative continues to grow with each passing year. This October, A-BE-C was represented by a dedicated team of surgeons, nurses, a social worker, and patient advocates.

Realizing that care for the entire patient – beginning with appropriate surgical counseling and preparation, to psychosocial support and postoperative management – is key to successful outcomes, the sessions focused on the challenges patients and families face through a spectrum of discussions and provide tools to show that BE Doesn’t Limit ME!  

A-BE-C recently presented its Richard W. Grady Humanitarian Award to Dr. William Reiner, Child and Adolescent Psychiatry, Urology. Dr Reiner, a world-renowned Child and Adolescent Psychiatrist, spent his career focused on the psychological aspects of bladder exstrophy. 

Like many of yours, our story is one of Acceptance of our son’s diagnosis, Bravery in the face of the unknown, Empathy for one another, Courage instead of fear, and Faith in God’s plan.

The first time you meet Dr. Boateng Nimako, you can tell he’s a special individual. It’s not only his calming voice or infectious smile, but also the way he fiercely advocates for his patients.

After two years of delays due to Covid, and then another delay due to an Ebola outbreak in Uganda, the US team was finally able to hold our second workshop at Uro Care in Kampala. Our committed team treated, connected with and supported 23 families from all over Uganda.

A-BE-C is so proud to be a part of the annual Bladder Exstrophy workshop which celebrated its 15th year in January!!! After two days of extensive discussion and five days of complex surgeries, I can’t thank Civil Hospital enough for their ongoing commitment to our beautiful children and families living with bladder exstrophy.