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  • WHAT IS BLADDER EXSTROPHY?
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    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2022 Annual Conference
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
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By Katie Baker
May 10, 2018
3 Comments

Second annual BE Extraordinary 3-on-3 Basketball Tournament a great success!

2018 BE Extraordinary Basketball Tournament
Some of the participants in the successful 2018 BE Extraordinary 3-on-3 Basketball Tournament hosted by the Texas Bladder Exstrophy Group

Congratulations and big thank you to all involved in this year’s BE Extraordinary 3-on-3 Basketball Tournament!  A special thanks to Brandi McSwain, one of the organizers who shares these highlights:

A day of celebrating of kids with bladder exstrophy and raising money for a wonderful organization! 

What a great day celebrating our BE kids, raising community awareness for this rare condition, and raising money for a wonderful organization! The 2nd Annual BE Extraordinary 3-on-3 Basketball Tournament was a success and had some big leaps from last year!

Doubling what was raised last year

We had enough interest to break our tournament into 2 brackets: A Teen Bracket played in the morning, and we had a full adult bracket in the afternoon! We were able to upgrade our winner’s prizes by having a local company donate hand painted wood signage, and we topped off the day by raising a total of just over $8,000 in our second year, doubling what we raised last year!

“Dad” team with two former NFL players and team from Cook Children’s among the competitors

Our bracket this year included a “dad team” with 2 former NFL players, a Teen team led by a 15 year old with Bladder Exstrophy, an Exstrophy team from Oklahoma,and our winning team from Wellspect Catheters made up of former college basketball players! We also had 2 very fun teams from Cook Children’s come out to play as well as quite a few volunteers from the hospital that came out and supported; it was really great for the kids (and parents) to get to see our medical team outside of more stressful Dr./hospital visits!

Showing “Exstrophy Warriors” that they are not alone

Most importantly, our kids are continuing to see how much of a difference they can make in other people’s lives. It is our groups biggest goal to show our Exstrophy Warriors they are not alone and that there are people that are “for them.”


Fundraise For A-BE-C

BE a fundraiser for A-BE-C! Join many others who have discovered they can raise money, have fun, and make a lasting positive impact on the lives of people living with this rare condition.

Community fundraising plays a special part of A-BE-C’s work. Funds raised support impact bladder exstrophy patients and their families both domestically and internationally with education, community support and access to health care specialists in bladder exstrophy.

We look forward to supporting and promoting your fundraiser! Share your plans and questions through the button below.

Registration is open for 2018 Exstrophy Conference in Cincinnati!
25 Apr, 2018
Teens give Dr. Kropp’s first Camp BElieve for bladder exstrophy a thumbs-up!
24 May, 2018

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