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Association for the Bladder Exstrophy Community
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Outcomes Survey
Blog
Find a Center of Excellence
Adult Provider Directory
Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • 2026 Annual Conference
  • RESOURCES & EDUCATION
    • Adult Provider Directory
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research & Articles
    • Support
    • Videos
    • Webinars
    • SHOP
  • OUR IMPACT
    • Our Why
    • BE Dry
    • India
    • Uganda
    • What’s Next?
  • ABOUT US
    • Leadership
    • Medical Advisory Council
    • Adult Patient Advisory Council
    • Contact
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Fundraise for A-BE-C
    • Physician Registration for 2027 India Workshop
by Angie Kujath
Posted on March 9, 2020
in
bladder exstrophy, Cook Children's Hospital

4th Annual BE Extraordinary 3-3 Basketball Tournament

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4 Comments
3191 Views
Homepage, Living with Bladder Exstrophy, Video

2019 Conference Videos Now Available!
February 20, 2020
By Angie Kujath
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2022 International Exstrophy Conference
by Angie Kujath
Posted on February 13, 2020
in
bladder exstrophy, bladder exstrophy conference, Dr gearhart, hopkins summer picnic, international exstrophy conference, johns hopkins

Proudly hosted in conjunction with Johns Hopkins

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2025 Great Lakes Chapter 16th Annual Summer Campout
Great Lakes Campout
by Angie Kujath
Posted on February 13, 2020
in
bladder exstrophy, campout, cloacal exstrophy, epispadias, Great Lakes Chapter, hypospadias

You are invited to join us for a weekend campout for anyone dealing with bladder exstrophy, cloacal exstrophy, epispadias and hypospadias and their families and friends. This is a great way to connect with other families, share in similar experiences and know that you are not alone!

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2020 B.E.S.T Campout
BEST, Bladder Exstrophy Support Team, California BEST, bladder exstrophy
by Angie Kujath
Posted on February 13, 2020
in
B.E.S.T, bladder exstrophy, Bladder Exstrophy Support Team, campout, Lake Tahoe

California Bladder Exstrophy Support Team (California B.E.S.T.)’s Annual Campout is a wonderful event at one of the most breathtaking locations…

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Association for the Bladder Exstrophy Community

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