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Blog
Find a Center of Excellence
Adult Provider Directory
Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • RESOURCES & EDUCATION
    • 2025 Annual Conference
    • Adult Provider Directory
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research & Articles
    • Support
    • Videos
    • Webinars
  • OUR IMPACT
    • Our Why
    • BE Dry
    • India
    • Uganda
    • What’s Next?
  • ABOUT US
    • Leadership
    • Medical Advisory Council
    • Adult Patient Advisory Council
    • Contact
  • SHOP
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Fundraise for A-BE-C
    • Physician Registration for 2026 India Workshop
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15 Comments
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Homepage, Living with Bladder Exstrophy, Video

Now Available: 2025 International Exstrophy Conference Videos

September 15, 2025
By Angie Kujath
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26 Comments
4481 Views
Homepage, Living with Bladder Exstrophy, Video

Now Available: 2024 International Exstrophy Conference Videos

October 28, 2024
By Angie Kujath
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3929 Views
Homepage, Living with Bladder Exstrophy, Video

2023 International Exstrophy Conference Videos

November 13, 2023
By Angie Kujath
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El milagro perfecto de Rosina

by Angie Kujath
Posted on July 17, 2020
in
Centers of Excellence, Living with Bladder Exstrophy

Rosina comparte la historia de su hija, Fátima, también conocida como “Mily”, y su viaje con extrofia cloacal en el Children’s Hospital Los Angeles.

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Rosina’s Perfect Miracle

by Angie Kujath
Posted on July 15, 2020
in
Centers of Excellence, Living with Bladder Exstrophy

Rosina shares the story of her daughter, Fatima aka “Mily”, and their journey with cloacal exstrophy at Children’s Hospital Los Angeles.

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Association for the Bladder Exstrophy Community

505 Beachland Blvd. Ste: 1-#180
Vero Beach, FL 32963

Email: [email protected]

TaxID: 68-0252009

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