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Outcomes Survey
Blog
Find a Center of Excellence
Adult Provider Directory
Association for the Bladder Exstrophy Community
  • WHAT IS BLADDER EXSTROPHY?
    • I’m New Here
    • Causes & Diagnosis
  • 2026 Annual Conference
  • RESOURCES & EDUCATION
    • Adult Provider Directory
    • Bathroom Toolkit
    • Bladder Exstrophy App
    • Catheter Information
    • Centers of Excellence
    • FAQs
    • Research & Articles
    • Support
    • Videos
    • Webinars
    • SHOP
  • OUR IMPACT
    • Our Why
    • BE Dry
    • India
    • Uganda
    • What’s Next?
  • ABOUT US
    • Leadership
    • Medical Advisory Council
    • Adult Patient Advisory Council
    • Contact
  • GIVE
    • Give Now
    • Donate Monthly
    • Employer Match
    • Fundraise for A-BE-C
    • Physician Registration for 2027 India Workshop

Meet the Texas Bladder Exstrophy Support Group

by Katie Baker
Posted on January 31, 2017
in
Community, Fundraiser, News

In 2015, a small group of three families came together to found the Texas Bladder Exstrophy Group. We are an…

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Families in India learn post-surgical care for bladder exstrophy

by Katie Baker
Posted on January 13, 2017
in
Global Care, News, Uncategorized

Among the nearly 100 children who received checkups and medical procedures for bladder exstrophy at the operative workshop in India in…

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Nearly 100 exstrophy patients receive treatment in Ahmedabad, India

by Katie Baker
Posted on January 12, 2017
in
Global Care, News

The 9th annual Operative Workshop on Exstrophy and Epispadias Complex got underway just after the first of the year in Ahmedabad, India.…

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Seven-year-old Johnson finally gets a chance at healing

by Katie Baker
Posted on November 28, 2016
in
Global Care, News

At seven, Johnson (Ndyabagye) is old enough to understand that his body is different from those of his two brothers.…

Read More

Dawna’s “hobo-bags” a hit with young patients in India

by Katie Baker
Posted on November 15, 2016
in
Global Care, News

The children receiving care in India are grateful for more than just treatment for their bladder exstrophy. They are also the proud…

Read More
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Association for the Bladder Exstrophy Community

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