Congratulations and big thank you to all involved in this year’s BE Extraordinary 3-on-3 Basketball Tournament! A special thanks to Brandi…
Read MoreRegistration is open for 2018 Exstrophy Conference in Cincinnati!
A conference for the whole family! 6pm Thursday, June 7 – 4pm Saturday, June 9 “Whole Health” is the theme…
Read MoreGood News From Uganda!
With every bladder exstrophy patient there is a story of resilience and hope. A new chapter of young Ugandan Ndyabagye…
Read MoreFour exceptional physicians receive inaugural ‘Richard W. Grady Humanitarian Award’
Those who knew the late Dr. Richard W. Grady understand his unwavering commitment to children and families affected by bladder…
Read MoreMore than 100 bladder exstrophy patients receive life-changing treatment from international team
Approximately 110 children with bladder exstrophy receive life-changing treatment and care at the international eight day event Safe, affordable and…
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