Tommy Ludlow, the young recipient of the this year’s Courage to Shine award is already inspiring others to turn challenge…
Read MoreTeens give Dr. Kropp’s first Camp BElieve for bladder exstrophy a thumbs-up!
A handful of teens with bladder exstrophy were recently recruited to try out a new kind of event: a camping…
Read MoreSecond annual BE Extraordinary 3-on-3 Basketball Tournament a great success!
Congratulations and big thank you to all involved in this year’s BE Extraordinary 3-on-3 Basketball Tournament! A special thanks to Brandi…
Read MoreRegistration is open for 2018 Exstrophy Conference in Cincinnati!
A conference for the whole family! 6pm Thursday, June 7 – 4pm Saturday, June 9 “Whole Health” is the theme…
Read MoreGood News From Uganda!
With every bladder exstrophy patient there is a story of resilience and hope. A new chapter of young Ugandan Ndyabagye…
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