2019 International Exstrophy Conference June 28-30, 2019 at Children’s Hospital Los Angeles Los Angeles, California, USA Visit the conference page…
Read MoreAnimated video especially for children with bladder exstrophy
The Boy with the Tiny Belly Button is a wonderful animated film for all children born with bladder exstrophy.
Read More8 U.S. hospitals are best-in-class for bladder exstrophy
The Association for the Bladder Exstrophy Community (A-BE-C) wants to shorten the time it takes families to find complete and…
Read More13-year-old Tommy Ludlow receives Courage To Shine award
Tommy Ludlow, the young recipient of the this year’s Courage to Shine award is already inspiring others to turn challenge…
Read MoreTeens give Dr. Kropp’s first Camp BElieve for bladder exstrophy a thumbs-up!
A handful of teens with bladder exstrophy were recently recruited to try out a new kind of event: a camping…
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